The Day After I Toothed My Brush

I was wiped out after 8 1/2 hours at the hospital getting my 4th Ocrevus infusion yesterday. The first three hours were spent waiting for the pharmacy to compound the drug and get it up to the unit for me to take. At a whopping $100,000 a pop they won’t start getting it ready until the nurses call and say they see the whites of my eyes.

Dangling an IV, waiting for the Ocrevus.

My head ached all afternoon and evening and I struggled to make sense. My favorite was when I told hubby I had “toothed my brush”and was ready for bed…at 8:30. I slept pretty good until about 4:40 this morning. – thanks, steroids I laid in bed daydreaming while snuggling Laudy and finally gave up and got out of bed around 5:40. I’d had three cups of coffee, eaten breakfast, read the news, showered, and was dressed all before I normally get up.

It’s been a long, slow day of flushing from the steroids and a still relentless headache as a side effect of the Ocrevus. It usually takes about 3-4 days to feel normal again. In the meantime, my arms are full of cats and there are plenty of birds at the feeders to entertain us.

The steroids are seeping out but the company is good.

I’ve pasted a link to my personal Walk MS page. Please consider making a donation, it would mean so much to me ☺️. I’m already a little more than halfway to meeting my $1000 goal. It’s way past time to find a cure! https://secure.nationalmssociety.org/site/TR/Walk/KSGWalkEvents?px=18236733&pg=personal&fr_id=31565

Thanks for stopping by. May God be with you! ❤️, Amy

3 thoughts on “The Day After I Toothed My Brush

  1. Awww…There was a reason I prayed for you last night. I couldn’t find my headphones to listen to my book so I just prayed before I fell asleep. And, you topped the prayer list last night. It is a reminder that we serve an awesome God who reminds us to seek Him even for reasons unknown to us. That really amazes me because I had no clue about your injections.

    Love you!

    Buffy Spencer Century Elementary, Speech-language Pathologist 417.724.3821

    Like

  2. I can’t believe it’s your FOURTH infusion already I guess this means you keep getting more valuable 4million dollar girl. Jk, you are priceless

    Sent from my iPhone

    >

    Like

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