Hello, Friend! I hope you are well wherever you are when this post finds you.
I’m currently sitting on the back patio watching the birds on a gorgeous May afternoon. I can hear cardinals, house finches, titmice, and blue jays calling, singing, squeaking, and buzzing from the canopy overhead and behind us. Though it’s a warm, sunny day, there’s a lovely light breeze in the shade keeping me cool and bringing the last scent of quickly fading lilac across the yard to me. It is a springtime feast for the senses!
Yesterday and today have been absolutely joyful days as my typically excessive MS fatigue has lessened and allowed me to be up and about more than usual. So, naturally, I rode my scooter over to the lake in our neighborhood yesterday and soaked in some Vitamin D and the beauty of God’s creation around me.
After I rode back home from the lake, I decided to sit under the birches in the backyard.
Thanks for stopping by. May God be with you! ❤️, Amy
When it rains it pours! Our dishwasher gave up the ghost Saturday morning (my birthday) and flooded the kitchen.
Thankfully, Hubby is a pretty smart cookie and got the water shut off.
He wrangled the dishwasher out of it’s nest and discovered the water lines from it were bad and the tub on the bottom had a crack.
We found a replacement the same day and my Dad helped us get it home and supervised Hubby’s installation.
It was a lot of work, but Hubby got the job done and it was sealed with Pip’s approval. 😻
Speaking of Pip, we have been dealing with a bit of a scare with him. Last month during his regular, annual check-up we learned he had a grade 2 heart murmur. Our vet referred us to the University of Missouri Vet Clinic to see a cardiologist to investigate the issue further.
She gave us some good news today that it looks benign and we are scheduled to go back next year to keep an eye on things.
The weather has been nice enough each afternoon this week and, despite pretty lousy MS fatigue, I’ve been able to make it onto the patio to watch the birds. They fill my heart with joy and gratitude to God for the wonder of His creation.
Thanks for stopping by. I hope you have a wonderful day! May God be with you. ❤️, Amy
Hello! I bet you didn’t expect to hear from me again so soon, did you? It’s been a while since I did a “week in my life” sort of blog, so…I did. Let’s see, when I last wrote I believe I told you I had finally tested negative for Covid 🎉. I was still sick, though. I started some antibiotics for a bacterial sinus infection 5 days ago and am happy to report that I am doing much better. I still have a cough, but I’m hoping it will continue to dissipate with time (and another 5 days of antibiotics 😉).
Surprisingly, my MS hasn’t been too bad this week and I was able to putter around the house with reasonable rest breaks between activities. This has been a HUGE blessing to me ☺️!
Anywho, I’ve been sewing up a storm and enjoying myself thoroughly this week! As a matter of fact, in the pictures you’re about to see I think I’m wearing four different things I either finished up or made this week. (There’s more sewing stuff a bit further down too 🙂.)
Covid wore me out and I hadn’t cooked for over two weeks, we survived on freezer meals I had squirrelled away. I finally found the energy to get in the kitchen again on Tuesday. I made a huge pot of beef barley soup, enough to last us several days. I also decided to get out my Mom’s high school Home Ec. cookbook and made a couple loaves of our favorite bread. Mom’s book has seen better days, but it is very special to me and has some great recipes.
Oh, and I made some chocolate chip bars on Thursday from the King Arthur Flour Cookie Cookbook. 😋. I love lots of chocolate chips but Hubby only wants a few, and the itty-bitty ones. So, I compromised and put half the normal amount of my chips and some of his tiny chips into the batter and they actually managed to please both of us.
I hadn’t cleaned my sewing room for several weeks, it was really bad. I cleared the decks on Monday and gave it a good going over. I don’t know how I didn’t end up at urgent care with 23 pins stuck in my feet! YIKES 😬! I also gave both my sewing machine and my serger a good service and cleaning.
The next few photos are random.
Of course I watched the birds this week!
Lastly, I’ll share some of my favorite moments of the week with Pip and Laudy, my constant companions.
Thanks for joining me this week. May God be with you. ❤️, Amy
At the end of January I had a blood test to see if my immune system was rebuilding itself after stopping my MS treatments about a year ago (March 1st to be exact). The good news is yes, I have some nascent cells emerging. The bad news is I don’t have very many. I’m still immunocompromised, but the tide is slowly turning 🥳.
My MS has been all over the shop. Two weeks ago I had a string of good days and was able to cook and sew and putter around the house. Yesterday afternoon I couldn’t sit up or hold my head up and spent hour after hour in bed. Today, I’ve been able to sit up and ride around the house on my scooter, but my legs are like concrete and won’t work. Tomorrow? Your guess is as good as mine. The only predictable thing about MS is its unpredictability.
Thanks for staying tuned and stopping by. May God be with you! ❤️, Amy
Energy all gone, Feels like I’m in a coma – A puddle of goo.
I think I’ve melted into and become one with my recliner these last four days.
Thankfully, once again, my feathered friends have come to the rescue and filled the long hours with the joy of their songs and avian antics.
Another source of happiness filling my idle time has been the company of our cats, Laudy and Pip. They have no idea what a blessing and source of company they are to me, but I count them as one of God’s treasures gifted to my keeping. And they are experts at the art of resting 😻.
A person very dear to me gifted Hubby and I a fun surprise, a 6-month subscription to Universal Yums. It’s a monthly box featuring snack food from different countries around the world. This month’s box arrived yesterday with treats from… Austria 🇦🇹 😋!
As you can see, my life has revolved mostly around our cats Laudy and Pip. That’s as it should be for a crazy cat lady. I did squeeze in making some delicious English muffins; they didn’t last long. They were especially good with some Tiptree Raspberry Jam made in England 😋.
Southwest Missouri has been in the grips of a severe drought this summer made worse by excessive heat over 100°F these last couple of weeks. As a result, I’ve not been out of the house much because MS and heat don’t mix well. Summer has traded her usually lush green frock for a drab yellowish-brown garb that isn’t nearly as attractive. We may get some rain later this week, it’s gotta come sometime!
The MS Update Part: You may remember that a few years ago I started taking a drug for my MS named Ocrevus. It was an IV infusion given every six months and I was able to get the last couple of doses at home through home infusion nursing. Well, after a lot of prayer and discussion with my neurologist, I have decided to stop taking the drug. This will be the first time in 26 years that I will not be on a disease modifying therapy. My disease has continued to progress, in the normal course of things, to a place where there are no current drugs to treat it. I’ve known I’ve had Secondary Progressive MS for the last few years but opted to treat it with the drugs available for Relapsing Remitting MS because nothing else was available. Ocrevus has some significant side effects when used long-term and I’ve reached the point where the risks outweigh the benefits. Not everyone with MS may agree with my decision but, for better or for worse, no one else has to live with the results but me. As always with MS, no two people have the same disease progression or outcomes. Though I appreciate the concern and good will of others, please don’t send me articles and cures to try. I am probably already aware of whatever you’ve found on the internet or what your aunt’s cousin’s friend’s dad tried and how it “cured” him. I chose to educate myself about MS as soon as I was diagnosed and have stayed on top of research as well as drugs, diets, and homeopathic interventions ever since.
I am quite at peace with my decision, I’ve known this was coming for a long time. I’ve had 32 years to get used to my MS, we’ve sort of grown up together and understand each other 😉. As always, I appreciate your prayers. Considering how long I’ve had MS I know I am doing very well related to many others. I can still walk some for short periods of time and I can independently take care of most of my daily living needs. My wonderful hubby is my right hand and I know God gave me a tremendous gift when He gave Todd to me. My sister and Dad are always ready to help at the drop of a hat and my Mom-in-law is only a phone call away and has come to the rescue on more than one occasion. I also have a loving and supportive church family, as well as good friends who care and always offer to help me whenever needed.
Thanks for coming by to catch up today, I know it’s been a while since I last wrote. When things cool off a bit I’ll probably be more likely to post more often. May God be with you! ❤️, Amy
Hello again, Friend. Below you will find some random pictures of things I’ve been doing to fill my winter days.
I really enjoy following several YouTube vloggers in the sewing world and wondered how hard it would be to take pictures of each step of garment construction like they do. I gave it a go and learned they have a lot more patience than me! Most of the pictures I took are in my camera’s trash and there they will stay. I’m sharing a few just to make myself feel like I didn’t waste all the effort it took to complete the experiment.
My favorite Laudy pics of the past few weeks…
We had some really beautiful warmish days since my last post so, of course, I sat out in the backyard and watched the birds.
But, my favorite winter activity? Snuggling with Hubby!
Lord willing, I’ll write again soon. God be with you! ❤️, Amy
Hello again, it’s been a while. I’ve been remiss in writing, distracted by other things in life. Well, actually, just one thing (drumroll)…my MS. Shocker, I know. The last couple of weeks have been simply outrageous. I’ll spare you the details, but I have IV steroids coming my way to try and get things under some sort of control. Yesterday, the day the home infusion nurse (yes, Bill 😀) was ready to come to the house and hook me up, winter storm Landon arrived covering the roads with ice. Today, Landon dumped 7 inches of snow before going on his merry way. Bill texted to say he will come over this weekend to get me going once the roads become traversable.
The snow has been beautiful to watch as it swirls and blows in frigid gusts. We’ve had 30+ birds at a time come to the feeders these past couple of days for an easy meal during the storm.
As ever, the cats are keeping me company.
Gratefully, neither they nor my sweet Hubby see someone with MS when they look my way, they just see me – full stop. I feel so loved, and I know it doesn’t get any better than that.