At the end of January I had a blood test to see if my immune system was rebuilding itself after stopping my MS treatments about a year ago (March 1st to be exact). The good news is yes, I have some nascent cells emerging. The bad news is I don’t have very many. I’m still immunocompromised, but the tide is slowly turning 🥳.
My MS has been all over the shop. Two weeks ago I had a string of good days and was able to cook and sew and putter around the house. Yesterday afternoon I couldn’t sit up or hold my head up and spent hour after hour in bed. Today, I’ve been able to sit up and ride around the house on my scooter, but my legs are like concrete and won’t work. Tomorrow? Your guess is as good as mine. The only predictable thing about MS is its unpredictability.
Thanks for staying tuned and stopping by. May God be with you! ❤️, Amy
There I was having a perfectly good day last Saturday riding around with my hubby as he ran into a couple of stores for our weekly shopping, when all of a sudden I felt a familiar pain in my lower tummy. Within just a few minutes I felt the next stage of an all too familiar urge hit and I knew before we made it home I had a UTI.
Fun Fact: One of the most common symptoms of MS is bladder control problems. The bladder has spasms and won’t empty completely causing frequency and urgency. Because the bladder won’t empty completely, MSers get a UTI very easily.
Anyway, my suspicion was validated at urgent care that same Saturday afternoon and I came home with the usual round of antibiotics and some Azo to ease the pain. I typically feel better within 24 hours, but when things felt worse by Sunday evening I knew we needed to go back to see what was going on.
A kidney infection was what was going on. I got a different script for a stronger antibiotic for the next seven days and then a thigh-full of another one. They warned me it would hurt as they added Lidocaine to the concoction and said it would take about 30-40 seconds to give because it was “thick”. I made it through the shot, but then nearly passed out 🥴. My blood pressure dropped too low very suddenly, I got all sweaty, and felt myself going. No big deal, I recovered and they let me go within another 30 minutes. Passing out was nothing compared to the pain throbbing through my thigh! With hubby dragging me by one arm and my cane propping me up to stay vertical with the other, I limped and whimpered my way to the car and thought, “That shot better be worth it!”
I’ve had lots of UTIs, but this was my first kidney infection; I wasn’t quite ready for how hard it kept hitting and how long it took to feel better. By Wednesday I knew I was going to live and felt back to my normal self on Thursday.
During the time it took to recover, I didn’t do much. I filled the lethargic days by hanging out with and generally loving around on the cats, reading an Inspector Morse mystery, listening to Dickens’ Bleak House, putting some puzzles together on my favorite puzzles app, and sleeping a lot. Finally, on Thursday and Friday, I ventured back out on the patio for short bits in the mornings and evenings – to avoid the heat, another no-no when you have MS – and even managed to muster the energy to sew a cute little tunic with an adorable cat print for myself!
There is a river just a mile and a half down the road from our house with a lovely bridge and trail from which to admire nature. Hubby humoured me and took me for a while around noon on Friday. Though I can’t walk the trail anymore, we traversed the bridge and took in all the special delights that fill the senses when around running water. Birds chirping, breezes blowing, water rippling, the faint whiff of fish in the air, the sight and smell of earth and dirt eroding, tree roots erupting on trails down to the river banks, and the beauty of wildflowers clustered along the banks and in the undergrowth, or definitely blooming in solitary confidence and glory.
It feels so good to feel better! It was a good reminder to appreciate my general health, despite the MS. I’d take a lot of crummy MS days over going through that again any time soon. I hope you enjoy the pictures below and are able to get a sense of their feel and place for the ones not captioned.
I hope you have a wonderful week ahead. God be with you! ❤️