Feathers, Flurries, Felines, and MS

Hello again, it’s been a while. I’ve been remiss in writing, distracted by other things in life. Well, actually, just one thing (drumroll)…my MS. Shocker, I know. The last couple of weeks have been simply outrageous. I’ll spare you the details, but I have IV steroids coming my way to try and get things under some sort of control. Yesterday, the day the home infusion nurse (yes, Bill 😀) was ready to come to the house and hook me up, winter storm Landon arrived covering the roads with ice. Today, Landon dumped 7 inches of snow before going on his merry way. Bill texted to say he will come over this weekend to get me going once the roads become traversable.

The snow has been beautiful to watch as it swirls and blows in frigid gusts. We’ve had 30+ birds at a time come to the feeders these past couple of days for an easy meal during the storm.

There’s a dark-eyed junco somewhere there in our lilac tree.
Bluejay
Cardinal, male
Cardinal, female
Buff tan dark-eyed junco
Slate-tan dark-eyed junco

As ever, the cats are keeping me company.

Gratefully, neither they nor my sweet Hubby see someone with MS when they look my way, they just see me – full stop. I feel so loved, and I know it doesn’t get any better than that.

God be with you. ❤️, Amy

A Hairy Situation

WARNING: The following is an extremely exaggerated, fanciful description of a much less exciting story. No one was injured in the actual exploit. Names are not used to protect the identity of those involved.

She opened the top drawer of her cabinet and paused thoughtfully. She ran her fingers over the neatly aligned collection of scissors of various sizes, thicknesses, brands, and purposes. Nothing there seemed quite right. Suddenly, I saw the flash of inspiration turn her usually dull, milky-garnet eyes into lustrous gems. She quickly closed the drawer, bent down, reached under the cabinet, and pulled out a large plastic case. I heard the release of two clasps as she opened it on the ground directly behind me. Strangely, I noticed a faint whiff of gasoline mix with the scent of hairspray, botanical shampoos, and foamy mousses.

With absolutely no warning and the simultaneous feeling of fight or flight that only true terror can create, the whine of a two-stroke, single engine weed eater filled the retail space. The din reverberated off the mirrors, tiled floor, and rows of adjustable metal chairs. A deafening “thunk-tunk, thunk-tunk, thunk-tunk” whirred into life and ramped up into a high pitched scream just over my right shoulder. It swiftly came closer until I felt the very hair on my neck begin to move. I could tell the length of trimmer string was too long and was flicking past the protective case, like the tongue of a cobra tasting the air. Instinctively, I pulled away from the droning sound and was nearly out of the chair when I heard the stylist’s voice filtering somewhere through the bedlam. “Don’t worry, I know what I’m doing. I’ve done this hundreds of times and you’re going to love it!”.

Was she like a chainsaw artist and could sculpt ordinary hair into a beautiful pixie cut with this outrageously deadly tool? After all, I’d shown her a picture of what I wanted. Wasn’t that her license hanging right in front of me on the mirror saying she knew what she was doing?

It’s strange how much faith we put in a little slip of paper with an embossed seal. It gave me the courage to sit back down. As I felt the first chunk of hair whacked off, I squeezed my eyes as tightly as I could and hoped for the best. Thirty minutes passed and I was still alive when she told me she was done.

Because it was a really tired MS day and I didn’t want to be out any longer than absolutely necessary, I got a wet cut without having her blow out my hair and style it. I don’t know if she was trying to cover up the mess, but she showed the back of my hair to me through a small hand mirror. The little bit I saw looked pretty short but okay.

When I was about 10 years old I remember my Mom telling the stylist to cut my uber thick, long, blonde hair into something more manageable. Somehow the lady translated that into a female mullet. I cried uncontrollably until Mom took me back an hour later and had the stylist rid all traces of Liza Minnelli from my head. I haven’t felt like crying about my hair for 40 years. I tell that story because this is what I saw when I got a closer, fuller view in the mirror at home…

Disast-hair!!!

Obviously, I couldn’t leave it like that and I certainly wasn’t going to go back and let her take another whack at it (😜😂). Though I’ve trimmed up my own hair before, this was way beyond my skills. Besides, it’s hard to see what you’re doing through misty eyes. So, I ended up going to my Hubby’s barber. Though I had to wait my turn for two hours, he was able to get me in on the same day as the disast-hair and, well, see for yourself…

Aft-hair Hubby’s barber shaped it up.

Ahh, much better! Hey, local friends, do you have any recommendations for a good stylist who can handle short hair?

Photos from the last few weeks.

Southwest Missouri got a lot of snow last week, about 5-6 inches in our backyard.
All the snow had melted by the middle of this week. These are the last few water droplets draining from our gutters. Isn’t that a pretty piece of bark? It reminds me of a tunnel.

We have had some beautiful birds at the feeders this week. These are a few of my favorites.

White-throated Sparrow
Eastern Bluebird
American Goldfinch and Eastern Bluebird
A study in balance
I read that American Goldfinches weigh about the same as five teaspoons of granulated sugar.
Female Northern Cardinal
Male Northern Cardinal
Early in the week I added this corn holder to give the squirrels their own feeding spot. They still prefer to eat under the bird feeders. 🙄

I had a moderate amount of energy on Monday so I decided to squander it by going to the lake near our house. (And I do mean squander. I’m still recovering 😒.) Though it was still a bit cold, the sun was shining and it felt good to sit in it by the edge of the water. The lake was still frozen over but the ducks and geese didn’t seem to care.

There’s always one who doesn’t like to get in line.
Mallard pair
Just look at that patch of purple 💜!

I’ve been practicing using portrait mode with my camera this week. It’s impossible to take a bad picture of these two beauties 😻!

Laudy
Pip

I get the next dose of Ocrevus for my MS on Monday of this coming week. I have to wait three months after I get the infusion, but then I will FINALLY be able to get a Covid vaccine, Lord willing. I wish you health and happiness! ❤️, Amy

Doctor Day Dread

I don’t like “doctor day”.  I have one with my neurologist every six months, at least.  I had one today.  Although she is the best doctor I have ever had, has seen me through some really rough MS transition periods, and I like her as a person, I dread going to see her.  Though I live with MS and all the limitations it enforces daily, seeing a doctor specifically for the disease always brings the horribleness of it to the fore.

Firstly, I drove myself to the appointment, which required two days of vigilant rest in order to scrape enough energy together to do so safely.  I got home completely drained and, six hours later, I’m still sitting in the recliner exhausted.

My walking is worse so I get to go to physical therapy…again.  I’ve had P.T. several times over the last 30 years – something else to drive to.  It’s worth a shot though if they can help fix the hitch in my “get along”, causing pain in my hips and spasms in my legs.  I know I need to work on my balance and coordination, as well.

We discussed my bladder and the medicine change the urologist suggested – it’s always fun to talk about your bladder.  She said she wished there was something to do for the interminable, insufferable MS fatigue but it’s just part of it.  And, despite my trouble walking and the need for a cane, she said I’m lucky to still be able to walk after 30 years.  She said it’s likely due to the fact that I have dauntlessly exercised in some form or fashion nearly every day for the duration of my diagnosis.  Nearly all her other patients have moved to motorized wheelchairs this late in the game.

I’m going to get my next Ocrevus infusion the first of March, Lord willing.  My doctor told me to continue to stay away from people from now until four weeks after I get the medicine, after which it should be safe to get the Covid vaccine (if I can find one available).  As an aside, there was a lot of initial concern over whether Covid vaccines would be safe for people taking immunosuppressant MS drugs.  Thankfully, it has been deemed safe and, though they may blunt the full effect, they still seem to work their magic.

Seeing my neurologist is a reminder of all the fear and uncertainty that surrounds the future living with multiple sclerosis.  I wake up every day wondering what kind of day it will be.  Will I be able to walk?  Am I going to have enough energy to make lunch and dinner?  I try to take it one day at a time, and I usually succeed.  However, when I see the doctor I have to look back over the last six months or year and compare how I am now to how I was then.  The last several years, as the disease has slowly progressed, I see changes that are not pleasant to look at but over which I have no control. 

No one knows what the future holds, I know that.  It may or may not be as bad as I fear it could be.  I pray for a cure.  Realistically, I think they will have to figure out what causes it in the first place before there’s a cure.  It’s hard to win against an unknown, moving target.  So much more is known now than ever before and there are some solid theories about what triggers the onset and drives the progression of MS.  I hope I live to see the day when no one else dreads “doctor day” because of multiple sclerosis.

Chocolates and Pelicans

The first week of December is in the books, and I can hardly wait for each new day to hurry up and get here. I got myself an “Oh, Nuts!” chocolate advent calendar to enjoy. Mmm, Mmm! Here are a few of my favorites so far!

I know many people put their trees up early this year, but I couldn’t bring myself to do it. My Mom always had us girls decorate the tree the day after Thanksgiving. Somehow, now that she is gone, it makes her feel closer to follow familiar traditions. She gave me many of the ornaments, and I love the memories each of them brings back.

Hubby and I drove by the river near our house as we came home from grocery shopping this past Saturday and saw several American Pelicans floating around. I got home, grabbed my camera, and drove back as fast as I could hoping not to miss them. I needn’t have worried, they weren’t in any hurry. The fishing was apparently good because they snacked all afternoon. Wow, it was fun to watch them throw their heads down, bring up a fish, and watch it wiggle down their necks!

I sat and watched the pelicans for about an hour and started back along the walkway to my car when I heard a rustle in the bushes and trees. There were several bluebirds eating berries not five feet from me! I got as many shots as I could of them before the sound of my camera scared the group off, these were the best two images. It was just as exciting for me to see them as the pelicans.

I got in the car and drove just a bit further down the road to another access spot by the river and took a few more snaps before heading home. I was running out of energy and only stayed 10 minutes or so, but every second by a river is bliss to me and I’m not going to waste it.

I think these shots are proof positive that there is beauty in every season. As a matter of fact, there’s beauty in everything and in everyone, if you look for it. I am going to try to remember to look for the beautiful in the world around me. I’m especially reminded during the holiday season to be grateful God saw beauty and worth in His creation, enough so that He sent Christ to redeem us. God be with you! ❤️Amy

An Unspoiled Autumnal Walk

This past Friday I got in the car and drove to an opening in the woods just down the road from our house.  Although the spot was less than a quarter mile away, and any other person would have walked, I drove in an effort to reserve as much energy as possible so I could do a bit of exploring.  With my trusty cane in my right hand and my camera around my neck, I entered the forest along a well-maintained track.  I’d never been to this area before, though I had been planning to check it out since noticing it after we moved earlier this year.  The first half of the pictures below are some of the things I discovered.  I wish I could share the smell and sound of the leaves crunching beneath my feet; the birds calling and flying in the canopy above; the babbling of the small, mossy spring where dragonflies were sunning themselves; and the joyful feeling that I had stepped out of the real world and into a children’s fantasy book.

These wild turkeys were sunning themselves inside a cleared and fenced off, old, private, family cemetery.
I like to stroll through old cemeteries and imagine what kind of lives the inhabitants had.  They lived through the Civil War era and were loved and missed by someone.
I found this old plow laying in another clearing in the middle of the woods.  I wonder if it belonged to someone in the cemetery.
Though water from the mouth of the spring was definitely bubbling up from the rocks, it clearly wasn’t in any hurry to go anywhere.
I was lucky my shoe was the only thing that got wet.  Wobbly, unbalanced, cane-carrying walkers should not try to walk from rock to rock in order to discover the source of a spring!
Once out of the woods and heading back to the car parked along the road, I noticed this and the following lovelies basking and enjoying the last remaining fruits of the summer.
It was such a beautiful day that I drove to the river and walked on the bridge for a few minutes.
The only cloud in the sky reminded me of a leaping frog.
These guys allowed me to take not only their photo but also snaps of the drone they were figuring out. They were flying that thing absolutely everywhere!
I love the color of these berries. Honeysuckle berries, I think…?
A little family of turtles warming themselves.
Leaf detritus on the bridge.

I hope you have a chance to enjoy the changing seasons wherever you call home.

God be with you! ❤️, Amy