It’s been a very good couple of weeks 😊. My MS has loosened the reins a bit some days and not ruled my life as such a tyrant every moment. I’ve seen a lot of family, especially this past week, and they have boosted my spirits immensely.
These little friends came to visit too 🐦🪶!
My Hubby makes the best thin mint concretes – such a treat!
I hope you are enjoying your little slice of time in whichever corner of the world you call home. God be with you! ❤️, Amy
Hello again, Friend. Below you will find some random pictures of things I’ve been doing to fill my winter days.
I really enjoy following several YouTube vloggers in the sewing world and wondered how hard it would be to take pictures of each step of garment construction like they do. I gave it a go and learned they have a lot more patience than me! Most of the pictures I took are in my camera’s trash and there they will stay. I’m sharing a few just to make myself feel like I didn’t waste all the effort it took to complete the experiment.
My favorite Laudy pics of the past few weeks…
We had some really beautiful warmish days since my last post so, of course, I sat out in the backyard and watched the birds.
But, my favorite winter activity? Snuggling with Hubby!
Lord willing, I’ll write again soon. God be with you! ❤️, Amy
The last time I posted I told you I had a relapse of my MS and was getting ready for a few days of steroid infusions to try and hasten recovery. Sure enough, it happened and my symptoms have improved. My left eye stopped twitching and feeling numb, I can move my legs again and walk with less of a shuffle-stumble sort of thing. My energy level has improved to allow me to be up for more than 3-5 minutes at a time. Things are still not back to where they were before, but I’m hoping the trajectory continues to move up.
Huge doses of steroids given in a short time creates numerous icky side effects – one of the worst for me is flushing of the skin. That being said, the side effects during the infusion are nothing compared to the slam your body takes when your last dose is done. Agonizing, insipid, catatonic-like fatigue reigns for about three days while your skin hurts to the touch and your muscles ache down to the bone. Slowly, the goo seeps out through every pore of your being and, around day four, you sense you are morphing back into feeling like a human.
I’m so thankful it’s all behind me now. It’s been four years since I had a relapse necessitating steroids. Yesterday marked four years since I completely retired due to MS and April will mark 32 years since my diagnosis. I’ve never felt bitter about this disease nor thrown my fist in the air screaming, “Why me?”. I think a better question is “Why not me?”. Everyone has some struggle to deal with in life. There’s no such thing as luck, good or bad. There is such a thing as attitude, though. As Philippians 1:27 says, “Whatever happens, conduct yourselves in a manner worthy of the gospel of Christ.” Though “whatever happens” here is in reference to whether Paul can come to visit the Philippians or not, he goes on, in the same verse, to tell them, “Then, whether I come and see you or only hear about you in my absence, I will know that you stand firm in the one Spirit, striving together as one for the faith of the gospel.” No matter what diseases, frustrations, difficulties, or unexpected troubles come our way, we are to respond with a Christlike attitude that brings honor and praise to the glory of God.
Nothing makes me think of God more than His creation.
I hope you are doing well. May God be with you. ❤️, Amy
It’s been too hot around here to get out of the house much these last few weeks. However, I did ride my scooter early one morning down to the lake in our neighborhood to enjoy the dragonflies and flowers for a spell.
I braved the heat for a few minutes one day to get a pic of this lovely female cardinal hanging out in one of the birch trees behind our house.
Since I can’t get outside much I’ve been filling my time sewing. I got a new serger and have been absolutely floored by the steep learning curve. For the first couple of weeks I was convinced that not even NASA’s best could get the crazy thing to work consistently! I have read everything I could get my hands on and watched hours of YouTube vids in a determined effort to conquer and master the beast of a machine. Perseverance, about 15-20 hours of practicing on scraps, rethreading the booger, and adjusting knobs a million times AND…
I FINALLY figured out how to consistently get good seams on my serger! I made a cute nightgown that I love. I ordered this knit jersey on super clearance from Joann’s. The snails are very appropriate 😉.
I had my Ocrevus infusion yesterday so I’m fuzzy-headed with a bit of a headache. Around 4:00 this morning I started flushing from the steroids they served up to go along with it. I should start feeling better by tomorrow. For the first time ever I got to have the drug infused at home – so much easier for me! My newest bestie Bill, the infusion nurse, and I spent five quality hours chatting and sharing the ways God has worked in our lives. God is so good!
Sometimes I’m really proud of myself for being able to keep the rhythm of breathing going, such is the joy of MS fatigue.
In my last post I said I would try to write something about my MS, so here it is. Whew, this summer has been a challenge! I have had a smattering of a few good days here and there and even a few strung together in sequence, but more often than not I’ve been under the thumb of pervasive, domineering MS lethargy. Nope, it’s not the kind of tired that needs a nap and sitting to rest for a spell doesn’t shift it at all. Like having a bone dry fuel tank, no matter how hard you try to go, you end up getting absolutely nowhere. The engine won’t start, the wheels won’t go anywhere, the brakes won’t compress, the electric windows won’t budge… technically it’s a car, but it’s good for nothing. I still look like Amy on the outside but there’s no juice to animate me. The electrical wires of my nerves are stripped and the signals my brain tries to send to make my body move either can’t or only partially get through. As a result, I don’t walk right, my hands don’t work the way they’re supposed to, my bladder doesn’t know if it’s holding or letting go, my thoughts struggle to be strung into words, and my balance is all over the place making me stagger around like I’m drunk. Normal things like showering, getting dressed, eating, and even sitting up use inordinate amounts of energy because my nervous system is having to work 1,000 times harder than yours just to get the signals through. Some days, for some inexplicable reason, I spontaneously recharge fairly quickly and I get to do things other than basic human functions – these are my good days. Other days, most days if I’m honest, time passes from my favorite chair or lying in bed. I read, listen to audiobooks, put puzzles together on an app, watch TV, and snuggle with our cats.
MS and heat don’t mix, it makes all symptoms worsen, so I haven’t been on the patio taking pictures much the past few weeks. However, the past couple of days have been milder allowing me to snap a few pics of my feathered friends.
It’s been a month of MS fatigue and quiet living. I’ve ridden my scooter a few times to the lake in our neighborhood and enjoyed the dragonflies and flowers always present. Here are a few of my favorites.
One of these days I’ll write more. God be with you! ❤️, Amy
Hello, friends, it’s been a while. I’ve tried to write a few times but my thoughts have been all over the place. It’s hard to write intelligibly when you’re being jostled every which way riding at the back of the MS Bus over rough terrain. I’ve had some smooth spots here and there but there have been plenty of pothole infested gravel roads that have caused the wheels to come completely off.
I think the worst day was when I had wandered out onto the patio to watch the birds and got stranded for close to three hours. I was home alone and knew I was tired but misjudged the severity of it and entered a sort of locked-in state unable to move and get back into the house. There were birds a plenty at the feeders that day to keep me company, as well as butterflies and bees visiting the then blooming lilac bushes. However, as I rounded into the second hour, my bladder started to send a signal that became a blur of non-stop, unbearable …—… It was a true cliffhanger! Would my legs recover enough to get me inside before I lost control of my bladder?!? I’m happy to report that thirty minutes later, at the end of my bladder’s tether, my legs kicked in and saved the day!
Per usual, I’ve been snapping a few pics of the birds around the house. I was finally able to put the feeders up again about two weeks ago with no signs of sick birdies. I sure missed my little feathered friends! A pair of house finches made their nest on the wreath on the front door. Their brood of six have all made it so far, as you can see below. Mom and Dad have been keeping the nest floor clean by putting the little nippers’ poo on the edges of the nest. That will be fun to clean up 😝.
Here are a few of my favorites from the backyard.
Thanks to many of you, I am thrilled to report that I came in first among the local MS Walk fundraisers! From the bottom of my heart, I am truly grateful.
The ride is getting bumbier all of a sudden and I am going fuzzy again. I hope you are doing well and enjoying the beauties God has made all around you. ❤️, Amy