























May God be with you! ❤️, Amy
Living life with Multiple Sclerosis
























May God be with you! ❤️, Amy
When it rains it pours! Our dishwasher gave up the ghost Saturday morning (my birthday) and flooded the kitchen.

Thankfully, Hubby is a pretty smart cookie and got the water shut off.

He wrangled the dishwasher out of it’s nest and discovered the water lines from it were bad and the tub on the bottom had a crack.



We found a replacement the same day and my Dad helped us get it home and supervised Hubby’s installation.

It was a lot of work, but Hubby got the job done and it was sealed with Pip’s approval. 😻

Speaking of Pip, we have been dealing with a bit of a scare with him. Last month during his regular, annual check-up we learned he had a grade 2 heart murmur. Our vet referred us to the University of Missouri Vet Clinic to see a cardiologist to investigate the issue further.

She gave us some good news today that it looks benign and we are scheduled to go back next year to keep an eye on things.




The weather has been nice enough each afternoon this week and, despite pretty lousy MS fatigue, I’ve been able to make it onto the patio to watch the birds. They fill my heart with joy and gratitude to God for the wonder of His creation.













Thanks for stopping by. I hope you have a wonderful day! May God be with you. ❤️, Amy










At the end of January I had a blood test to see if my immune system was rebuilding itself after stopping my MS treatments about a year ago (March 1st to be exact). The good news is yes, I have some nascent cells emerging. The bad news is I don’t have very many. I’m still immunocompromised, but the tide is slowly turning 🥳.
My MS has been all over the shop. Two weeks ago I had a string of good days and was able to cook and sew and putter around the house. Yesterday afternoon I couldn’t sit up or hold my head up and spent hour after hour in bed. Today, I’ve been able to sit up and ride around the house on my scooter, but my legs are like concrete and won’t work. Tomorrow? Your guess is as good as mine. The only predictable thing about MS is its unpredictability.

Thanks for staying tuned and stopping by. May God be with you! ❤️, Amy
Energy all gone,
Feels like I’m in a coma –
A puddle of goo.
I think I’ve melted into and become one with my recliner these last four days.
Thankfully, once again, my feathered friends have come to the rescue and filled the long hours with the joy of their songs and avian antics.











Another source of happiness filling my idle time has been the company of our cats, Laudy and Pip. They have no idea what a blessing and source of company they are to me, but I count them as one of God’s treasures gifted to my keeping. And they are experts at the art of resting 😻.



A person very dear to me gifted Hubby and I a fun surprise, a 6-month subscription to Universal Yums. It’s a monthly box featuring snack food from different countries around the world. This month’s box arrived yesterday with treats from… Austria 🇦🇹 😋!

I hope you are well.
God be with you! ❤️, Amy
Sunny with a high of 78* F and a gentle breeze. I rode my scooter to the neighborhood lake and spent a couple hours besotted by God’s creation.























Thanks for stopping by. May God be with you. ❤, Amy
Hello again, it’s been a while. I’ve been remiss in writing, distracted by other things in life. Well, actually, just one thing (drumroll)…my MS. Shocker, I know. The last couple of weeks have been simply outrageous. I’ll spare you the details, but I have IV steroids coming my way to try and get things under some sort of control. Yesterday, the day the home infusion nurse (yes, Bill 😀) was ready to come to the house and hook me up, winter storm Landon arrived covering the roads with ice. Today, Landon dumped 7 inches of snow before going on his merry way. Bill texted to say he will come over this weekend to get me going once the roads become traversable.
The snow has been beautiful to watch as it swirls and blows in frigid gusts. We’ve had 30+ birds at a time come to the feeders these past couple of days for an easy meal during the storm.








As ever, the cats are keeping me company.


Gratefully, neither they nor my sweet Hubby see someone with MS when they look my way, they just see me – full stop. I feel so loved, and I know it doesn’t get any better than that.
God be with you. ❤️, Amy
I rode my scooter around our neighborhood this past week. Autumn is my favorite season and, despite a later than usual start, trees in our neck of the woods are glowing with color.






A couple of obligatory bird photos because, well… I love birds ❤️.


My Dad has slowly been giving me a lot of our family pictures and genealogy material this past year. As I looked through the latest batch I found a small book of “receipts” in the Edmunds Cookbook, compiled in 1909. Edmunds is a town in Indiana where my great grandparents lived in 1909 as members of the local Quaker community. I thought it would be fun to try to make a cake from the scant directions provided.





I hope you have a wonderful day! God be with you. ❤️, Amy
Sometimes I’m really proud of myself for being able to keep the rhythm of breathing going, such is the joy of MS fatigue.
In my last post I said I would try to write something about my MS, so here it is. Whew, this summer has been a challenge! I have had a smattering of a few good days here and there and even a few strung together in sequence, but more often than not I’ve been under the thumb of pervasive, domineering MS lethargy. Nope, it’s not the kind of tired that needs a nap and sitting to rest for a spell doesn’t shift it at all. Like having a bone dry fuel tank, no matter how hard you try to go, you end up getting absolutely nowhere. The engine won’t start, the wheels won’t go anywhere, the brakes won’t compress, the electric windows won’t budge… technically it’s a car, but it’s good for nothing. I still look like Amy on the outside but there’s no juice to animate me. The electrical wires of my nerves are stripped and the signals my brain tries to send to make my body move either can’t or only partially get through. As a result, I don’t walk right, my hands don’t work the way they’re supposed to, my bladder doesn’t know if it’s holding or letting go, my thoughts struggle to be strung into words, and my balance is all over the place making me stagger around like I’m drunk. Normal things like showering, getting dressed, eating, and even sitting up use inordinate amounts of energy because my nervous system is having to work 1,000 times harder than yours just to get the signals through. Some days, for some inexplicable reason, I spontaneously recharge fairly quickly and I get to do things other than basic human functions – these are my good days. Other days, most days if I’m honest, time passes from my favorite chair or lying in bed. I read, listen to audiobooks, put puzzles together on an app, watch TV, and snuggle with our cats.
MS and heat don’t mix, it makes all symptoms worsen, so I haven’t been on the patio taking pictures much the past few weeks. However, the past couple of days have been milder allowing me to snap a few pics of my feathered friends.











May God be with you! ❤️, Amy
Hello, friends, it’s been a while. I’ve tried to write a few times but my thoughts have been all over the place. It’s hard to write intelligibly when you’re being jostled every which way riding at the back of the MS Bus over rough terrain. I’ve had some smooth spots here and there but there have been plenty of pothole infested gravel roads that have caused the wheels to come completely off.
I think the worst day was when I had wandered out onto the patio to watch the birds and got stranded for close to three hours. I was home alone and knew I was tired but misjudged the severity of it and entered a sort of locked-in state unable to move and get back into the house. There were birds a plenty at the feeders that day to keep me company, as well as butterflies and bees visiting the then blooming lilac bushes. However, as I rounded into the second hour, my bladder started to send a signal that became a blur of non-stop, unbearable …—… It was a true cliffhanger! Would my legs recover enough to get me inside before I lost control of my bladder?!? I’m happy to report that thirty minutes later, at the end of my bladder’s tether, my legs kicked in and saved the day!
Per usual, I’ve been snapping a few pics of the birds around the house. I was finally able to put the feeders up again about two weeks ago with no signs of sick birdies. I sure missed my little feathered friends! A pair of house finches made their nest on the wreath on the front door. Their brood of six have all made it so far, as you can see below. Mom and Dad have been keeping the nest floor clean by putting the little nippers’ poo on the edges of the nest. That will be fun to clean up 😝.


Here are a few of my favorites from the backyard.













Thanks to many of you, I am thrilled to report that I came in first among the local MS Walk fundraisers! From the bottom of my heart, I am truly grateful.

The ride is getting bumbier all of a sudden and I am going fuzzy again. I hope you are doing well and enjoying the beauties God has made all around you. ❤️, Amy













Today is March 20th, the first day of spring, and that means my Grandpa Frank would have been 129 years old today. Happy birthday, Grandpa ❤️!!
I hope you have a wonderful day and get out to enjoy a bit of nature wherever you are. God be with you! ❤️, Amy