Too Hot To Bother and MS Update

As you can see, my life has revolved mostly around our cats Laudy and Pip. That’s as it should be for a crazy cat lady. I did squeeze in making some delicious English muffins; they didn’t last long. They were especially good with some Tiptree Raspberry Jam made in England πŸ˜‹.

Southwest Missouri has been in the grips of a severe drought this summer made worse by excessive heat over 100Β°F these last couple of weeks. As a result, I’ve not been out of the house much because MS and heat don’t mix well. Summer has traded her usually lush green frock for a drab yellowish-brown garb that isn’t nearly as attractive. We may get some rain later this week, it’s gotta come sometime!

The MS Update Part: You may remember that a few years ago I started taking a drug for my MS named Ocrevus. It was an IV infusion given every six months and I was able to get the last couple of doses at home through home infusion nursing. Well, after a lot of prayer and discussion with my neurologist, I have decided to stop taking the drug. This will be the first time in 26 years that I will not be on a disease modifying therapy. My disease has continued to progress, in the normal course of things, to a place where there are no current drugs to treat it. I’ve known I’ve had Secondary Progressive MS for the last few years but opted to treat it with the drugs available for Relapsing Remitting MS because nothing else was available. Ocrevus has some significant side effects when used long-term and I’ve reached the point where the risks outweigh the benefits. Not everyone with MS may agree with my decision but, for better or for worse, no one else has to live with the results but me. As always with MS, no two people have the same disease progression or outcomes. Though I appreciate the concern and good will of others, please don’t send me articles and cures to try. I am probably already aware of whatever you’ve found on the internet or what your aunt’s cousin’s friend’s dad tried and how it “cured” him. I chose to educate myself about MS as soon as I was diagnosed and have stayed on top of research as well as drugs, diets, and homeopathic interventions ever since.

I am quite at peace with my decision, I’ve known this was coming for a long time. I’ve had 32 years to get used to my MS, we’ve sort of grown up together and understand each other πŸ˜‰. As always, I appreciate your prayers. Considering how long I’ve had MS I know I am doing very well related to many others. I can still walk some for short periods of time and I can independently take care of most of my daily living needs. My wonderful hubby is my right hand and I know God gave me a tremendous gift when He gave Todd to me. My sister and Dad are always ready to help at the drop of a hat and my Mom-in-law is only a phone call away and has come to the rescue on more than one occasion. I also have a loving and supportive church family, as well as good friends who care and always offer to help me whenever needed.

Thanks for coming by to catch up today, I know it’s been a while since I last wrote. When things cool off a bit I’ll probably be more likely to post more often. May God be with you! ❀️, Amy

A Beautiful Day In the Ozarks

Sunny with a high of 78* F and a gentle breeze. I rode my scooter to the neighborhood lake and spent a couple hours besotted by God’s creation.

The touch of amber on the wings is stunning 😍
Yellow on black good for Jack
These wings shimmered like diamonds in the sun.
Amberwings are my personal favorite.
I love πŸ’š dragonflies!
Eyes in the moss
Can you see that tail?
Though I’m pretty sure this is the equivalent of a weed in the water, the colors are striking.
Daylily

Thanks for stopping by. May God be with you. ❀, Amy

A Week In My Life

Sunday was a beautiful day in the Ozarks so Hubby took me for a drive after church.
First thing Monday morning one of our cats puked her breakfast all over the blanket on our bed. So, laundry.
I listened to some classic rock while sewing up a tote bag on Monday.
One of Hubby’s work friends has been sharing with us some of the surplus eggs her hens have been laying. She loves the St. Louis Blues, so I found some themed fabric and made this up for her.
I don’t care about hockey, but I love the yellow and blue together.
Tuesday afternoon I rode my scooter to the little lake in our neighborhood and took a few photos.
Wednesday was a rest day. Pip and I watched the birds together πŸ₯°.
After work on Thursday, Hubby and I went to my Dad’s for dinner. Hubby then helped Dad clean out the gutters and…
…weed eat.
Dad worked hard too.
I sewed up a couple more totes on Friday. I think I’ve now made 13 bags from this pattern over the last year.
The cupcakes look yummy πŸ˜‹!
I love the pockets, they make the bag very versatile.
Friday was a tough MS day with very limited energy. I was pretty proud that I was able to get the kitchen cleaned.
Today, Saturday, has been another MS dominant day. I sat on the patio this afternoon and enjoyed watching the birds and this little fella.
I think squirrels are funny and cute, though I know they can be pests.

I hope you are doing well. God be with you! ❀️, Amy

Hoppy May

I always look forward to a visit from the migrating red-breasted grosbeaks each spring.Β  I noticed this sweet lady this morning but haven’t seen a male yet.Β 
Grosbeaks are in the same family, Cardinalidae, as cardinals.Β  Can you see the family resemblance?
This robin hit the jackpot by our neighborhood lake.
Evidence that spring is all around us.
Several frogs were sunning themselves in our neighborhood lake earlier in the week when the weather was nice.Β  There were only a few pink petals floating in the water but this little fella found one.
I’m not sure who was watching who.Β  Those eyes πŸ‘€!!
I love how you can really see this frog’s tympanic membrane πŸ‘‚.
The eating must be good at the lake 🦟
I have no idea what this is but it was pretty cool with all the bubbles inside it’s top.Β  If it was an inkblot, I’d say it looks like a person walking down the street with an invisibility cloak over the top half of their body.

I hope you are enjoying your week.  See you next time!  ❀️, Amy

Happy Spring, Ya’ll!

It’s here! Sure signs of Spring are breaking out all over the Ozarks.

Red-winged Blackbirds all in a row by our neighborhood lake.
I wandered lonely as a cloud
That floats on high o’er vales and hills,
When all at once I saw a crowd,
A host, of golden daffodils;
Beside the lake, beneath the trees,
Fluttering and dancing in the breeze.


Continuous as the stars that shine
And twinkle on the milky way,
They stretched in never-ending line
Along the margin of a bay:
Ten thousand saw I at a glance,
Tossing their heads in sprightly dance.


The waves beside them danced; but they
Out-did the sparkling waves in glee:
A poet could not but be gay,
In such a jocund company:
I gazedβ€”and gazedβ€”but little thought
What wealth the show to me had brought:


For oft, when on my couch I lie
In vacant or in pensive mood,
They flash upon that inward eye
Which is the bliss of solitude;
And then my heart with pleasure fills,
And dances with the daffodils.

– William Wordsworth
Ornamental pear tree, I think.
The first bee I’ve seen this year.
Just look at that face covered in pollen 🐝.
Stork’s bill, or at least that’s what Google came up with.
I love to see what grows around the lake.
That little dot of magenta made me so happy!
Though it took all of last week, I managed to finish a dress by doing a little each day. It has become a habit for Pip to climb into his little pouch and take a snooze when I’m at my machine. I’m not sure which slows me down more, MS or Pip πŸ˜‰.

I hope you have a wonderful week and take the time to look at the world around you.

God be with you! ❀️, Amy

Cozy Days

Hello again, Friend. Below you will find some random pictures of things I’ve been doing to fill my winter days.

I really enjoy following several YouTube vloggers in the sewing world and wondered how hard it would be to take pictures of each step of garment construction like they do. I gave it a go and learned they have a lot more patience than me! Most of the pictures I took are in my camera’s trash and there they will stay. I’m sharing a few just to make myself feel like I didn’t waste all the effort it took to complete the experiment.

My notions and the PDF pattern.
The tail end of cutting it out.
I had enough fabric to make two tunics. I found the jersey knit on Etsy and loved the prints together.
Sewing the pocket on.
Finishing the hem.
It was my first time sewing a cowl neck.
The little pocket in the contrasting fabric turned out so cute πŸ₯°.
I’ve learned to keep a stash of bandaids by my machine πŸ™„. Blood, sweat, and tears πŸ˜‰!

My favorite Laudy pics of the past few weeks…

We had some really beautiful warmish days since my last post so, of course, I sat out in the backyard and watched the birds.

House finch pair with a goldfinch looking on.
Carolina chickadee
Downy woodpecker
πŸ’›

But, my favorite winter activity? Snuggling with Hubby!

Lord willing, I’ll write again soon. God be with you! ❀️, Amy

Hello, Again

Hello, again.

The last time I posted I told you I had a relapse of my MS and was getting ready for a few days of steroid infusions to try and hasten recovery. Sure enough, it happened and my symptoms have improved. My left eye stopped twitching and feeling numb, I can move my legs again and walk with less of a shuffle-stumble sort of thing. My energy level has improved to allow me to be up for more than 3-5 minutes at a time. Things are still not back to where they were before, but I’m hoping the trajectory continues to move up.

The IV was placed right where my wrist bends, not ideal. It was a long three days.
Hubby made me a “splint” to remind me not to bend my wrist. It worked a treat other than the fact I had a piece of wood there day and night. I cut a sock and used it to keep my splint in place.

Huge doses of steroids given in a short time creates numerous icky side effects – one of the worst for me is flushing of the skin. That being said, the side effects during the infusion are nothing compared to the slam your body takes when your last dose is done. Agonizing, insipid, catatonic-like fatigue reigns for about three days while your skin hurts to the touch and your muscles ache down to the bone. Slowly, the goo seeps out through every pore of your being and, around day four, you sense you are morphing back into feeling like a human.

I’m so thankful it’s all behind me now. It’s been four years since I had a relapse necessitating steroids. Yesterday marked four years since I completely retired due to MS and April will mark 32 years since my diagnosis. I’ve never felt bitter about this disease nor thrown my fist in the air screaming, “Why me?”. I think a better question is “Why not me?”. Everyone has some struggle to deal with in life. There’s no such thing as luck, good or bad. There is such a thing as attitude, though. As Philippians 1:27 says, “Whatever happens, conduct yourselves in a manner worthy of the gospel of Christ.” Though “whatever happens” here is in reference to whether Paul can come to visit the Philippians or not, he goes on, in the same verse, to tell them, “Then, whether I come and see you or only hear about you in my absence, I will know that you stand firm in the one Spirit, striving together as one for the faith of the gospel.” No matter what diseases, frustrations, difficulties, or unexpected troubles come our way, we are to respond with a Christlike attitude that brings honor and praise to the glory of God.

Nothing makes me think of God more than His creation.

Carolina Wren
American Goldfinches
Tufted Titmouse
Lucky shot πŸ“Έ
Carolina Chickadee
White-breasted Nuthatch
Fisheye lens through our birch trees.
Hubby threw some eggs in the yard and some American Crows enjoyed them. I love all birds.
Blowing in the wind…
… beautifully.

I hope you are doing well. May God be with you. ❀️, Amy

Feathers, Flurries, Felines, and MS

Hello again, it’s been a while. I’ve been remiss in writing, distracted by other things in life. Well, actually, just one thing (drumroll)…my MS. Shocker, I know. The last couple of weeks have been simply outrageous. I’ll spare you the details, but I have IV steroids coming my way to try and get things under some sort of control. Yesterday, the day the home infusion nurse (yes, Bill πŸ˜€) was ready to come to the house and hook me up, winter storm Landon arrived covering the roads with ice. Today, Landon dumped 7 inches of snow before going on his merry way. Bill texted to say he will come over this weekend to get me going once the roads become traversable.

The snow has been beautiful to watch as it swirls and blows in frigid gusts. We’ve had 30+ birds at a time come to the feeders these past couple of days for an easy meal during the storm.

There’s a dark-eyed junco somewhere there in our lilac tree.
Bluejay
Cardinal, male
Cardinal, female
Buff tan dark-eyed junco
Slate-tan dark-eyed junco

As ever, the cats are keeping me company.

Gratefully, neither they nor my sweet Hubby see someone with MS when they look my way, they just see me – full stop. I feel so loved, and I know it doesn’t get any better than that.

God be with you. ❀️, Amy

Mallards and Monarchs

This beauty came right up beside me and let me take his picture. I think he knew he was a looker.
Although she was a bit more cautious than her male companion, she flashed several poses.
This little guy kept telling his Mom, “I’m playing with the ducks!”. I’m not sure the ducks saw it that way πŸ˜‰.
It was a windy day and this cutie pie held her bangs back so she could watch her brother “play” with the ducks.
As I sat by the lake, I noticed this butterfly land on the side of my leg. It had a couple of injuries to it’s wings and seemed unafraid of me. Over the span of the next hour it made it’s way onto my fingers and then into the palm of my hand. It was incredible to watch it taste my skin with it’s long, bendy tongue. It had some visible pollen on it’s wings so I knew it had been out foraging. It seemed as if it needed a rest and I felt honored it chose me as a safe harbor. It’s been a little over a week since my encounter with this tiny creature, nevertheless, its memory has flitted across my mind numerous times.
The sun through the just changing autumnal leaves was glorious.
Sun on a single strand of a spider’s web.
I can’t get over how big a fiery skipper’s eyes are compared to it’s head. I could almost feel it watching me as it crawled over the flowers of our butterfly bush.
Joy of joys, the monarchs have found our butterfly bushes! We’ve had as many as eight at a time πŸ¦‹β€οΈ!! The way the sun shines through their wings reminds me of stained glass.
AND, I think this is a spicebush swallowtail. What a neat little fella!

I hope you are doing well. God be with you. ❀️, Amy