MS – Amy's Axons

May 2022

A Week In My Life

May 14, 2022May 14, 2022by amysaxonsLeave a Comment

Sunday was a beautiful day in the Ozarks so Hubby took me for a drive after church.

First thing Monday morning one of our cats puked her breakfast all over the blanket on our bed. So, laundry.

I listened to some classic rock while sewing up a tote bag on Monday.

One of Hubby’s work friends has been sharing with us some of the surplus eggs her hens have been laying. She loves the St. Louis Blues, so I found some themed fabric and made this up for her.

I don’t care about hockey, but I love the yellow and blue together.

Tuesday afternoon I rode my scooter to the little lake in our neighborhood and took a few photos.

Wednesday was a rest day. Pip and I watched the birds together 🥰.

After work on Thursday, Hubby and I went to my Dad’s for dinner. Hubby then helped Dad clean out the gutters and…

I sewed up a couple more totes on Friday. I think I’ve now made 13 bags from this pattern over the last year.

I love the pockets, they make the bag very versatile.

Friday was a tough MS day with very limited energy. I was pretty proud that I was able to get the kitchen cleaned.

Today, Saturday, has been another MS dominant day. I sat on the patio this afternoon and enjoyed watching the birds and this little fella.

I think squirrels are funny and cute, though I know they can be pests.

I hope you are doing well. God be with you! ❤️, Amy

February 2022

Hello, Again

February 16, 2022February 16, 2022by amysaxons1 Comment

Hello, again.

The last time I posted I told you I had a relapse of my MS and was getting ready for a few days of steroid infusions to try and hasten recovery. Sure enough, it happened and my symptoms have improved. My left eye stopped twitching and feeling numb, I can move my legs again and walk with less of a shuffle-stumble sort of thing. My energy level has improved to allow me to be up for more than 3-5 minutes at a time. Things are still not back to where they were before, but I’m hoping the trajectory continues to move up.

The IV was placed right where my wrist bends, not ideal. It was a long three days.

Hubby made me a “splint” to remind me not to bend my wrist. It worked a treat other than the fact I had a piece of wood there day and night. I cut a sock and used it to keep my splint in place.

Huge doses of steroids given in a short time creates numerous icky side effects – one of the worst for me is flushing of the skin. That being said, the side effects during the infusion are nothing compared to the slam your body takes when your last dose is done. Agonizing, insipid, catatonic-like fatigue reigns for about three days while your skin hurts to the touch and your muscles ache down to the bone. Slowly, the goo seeps out through every pore of your being and, around day four, you sense you are morphing back into feeling like a human.

I’m so thankful it’s all behind me now. It’s been four years since I had a relapse necessitating steroids. Yesterday marked four years since I completely retired due to MS and April will mark 32 years since my diagnosis. I’ve never felt bitter about this disease nor thrown my fist in the air screaming, “Why me?”. I think a better question is “Why not me?”. Everyone has some struggle to deal with in life. There’s no such thing as luck, good or bad. There is such a thing as attitude, though. As Philippians 1:27 says, “Whatever happens, conduct yourselves in a manner worthy of the gospel of Christ.” Though “whatever happens” here is in reference to whether Paul can come to visit the Philippians or not, he goes on, in the same verse, to tell them, “Then, whether I come and see you or only hear about you in my absence, I will know that you stand firm in the one Spirit, striving together as one for the faith of the gospel.” No matter what diseases, frustrations, difficulties, or unexpected troubles come our way, we are to respond with a Christlike attitude that brings honor and praise to the glory of God.

Nothing makes me think of God more than His creation.

Hubby threw some eggs in the yard and some American Crows enjoyed them. I love all birds.

I hope you are doing well. May God be with you. ❤️, Amy

February 2022

Feathers, Flurries, Felines, and MS

February 3, 2022February 3, 2022by amysaxons2 Comments

Hello again, it’s been a while. I’ve been remiss in writing, distracted by other things in life. Well, actually, just one thing (drumroll)…my MS. Shocker, I know. The last couple of weeks have been simply outrageous. I’ll spare you the details, but I have IV steroids coming my way to try and get things under some sort of control. Yesterday, the day the home infusion nurse (yes, Bill 😀) was ready to come to the house and hook me up, winter storm Landon arrived covering the roads with ice. Today, Landon dumped 7 inches of snow before going on his merry way. Bill texted to say he will come over this weekend to get me going once the roads become traversable.

The snow has been beautiful to watch as it swirls and blows in frigid gusts. We’ve had 30+ birds at a time come to the feeders these past couple of days for an easy meal during the storm.

There’s a dark-eyed junco somewhere there in our lilac tree.

As ever, the cats are keeping me company.

Gratefully, neither they nor my sweet Hubby see someone with MS when they look my way, they just see me – full stop. I feel so loved, and I know it doesn’t get any better than that.

God be with you. ❤️, Amy

December 2021

Happily Ever After

December 31, 2021December 31, 2021by amysaxonsLeave a Comment

Hubby and I celebrated 16 years of marriage yesterday 💕. He’s always been and always will be the best part of my life. God gave each of us to the other and not a day goes by without recognizing and giving thanks for such a love as this.

Using my zoom lens with the fisheye effect.

Chicken soup for the puny, I had the flu but am better now.

Typical of my life living with MS in 2021 – feet up. I suspect more of the same in 2022.

Thank you to all who follow or occasionally peruse my blog. I wish you a safe, happy, and healthy New Year! ❤️, Amy

October 2021

Mallards and Monarchs

October 17, 2021October 17, 2021by amysaxonsLeave a Comment

This beauty came right up beside me and let me take his picture. I think he knew he was a looker.

Although she was a bit more cautious than her male companion, she flashed several poses.

This little guy kept telling his Mom, “I’m playing with the ducks!”. I’m not sure the ducks saw it that way 😉.

It was a windy day and this cutie pie held her bangs back so she could watch her brother “play” with the ducks.

As I sat by the lake, I noticed this butterfly land on the side of my leg. It had a couple of injuries to it’s wings and seemed unafraid of me. Over the span of the next hour it made it’s way onto my fingers and then into the palm of my hand. It was incredible to watch it taste my skin with it’s long, bendy tongue. It had some visible pollen on it’s wings so I knew it had been out foraging. It seemed as if it needed a rest and I felt honored it chose me as a safe harbor. It’s been a little over a week since my encounter with this tiny creature, nevertheless, its memory has flitted across my mind numerous times.

The sun through the just changing autumnal leaves was glorious.

Sun on a single strand of a spider’s web.

I can’t get over how big a fiery skipper’s eyes are compared to it’s head. I could almost feel it watching me as it crawled over the flowers of our butterfly bush.

Joy of joys, the monarchs have found our butterfly bushes! We’ve had as many as eight at a time 🦋❤️!! The way the sun shines through their wings reminds me of stained glass.

AND, I think this is a spicebush swallowtail. What a neat little fella!

I hope you are doing well. God be with you. ❤️, Amy

September 2021

One Singular Sensation!

September 24, 2021by amysaxons1 Comment

One great place to enjoy a gorgeous Autumnal day.

The back of my scooter with a new sticker telling all my one and only wish.

The one corner of our yard I can’t stop watching for fear of missing all the butterflies, skippers, and hummingbirds who visit.

One eye of a butterfly bush flower getting a right good going over.

For there is one God and one mediator between God and mankind, the man Christ Jesus. ~ 1 Timothy 2:5

One more post has come to an end. ❤️, Amy

September 2021

A Week In My Life

September 17, 2021September 17, 2021by amysaxonsLeave a Comment

Pip is my little sewing helper. He had been walking in, through, up, down, over, and around for quite a while before finally sitting front and center. When you need attention, you need attention 😺.

So…I finally gave up, went and got a robe, and tucked him in. He settled right down, purred like a freight train, and stayed until I finished up.

Laudy knows how to get her snuggle time too 😻. This was first thing in the morning one day…

… and this was last Saturday. My shirt says, *On Caturdays We Wear Cat Shirts*.

I had my Ocrevus infusion on the first of this month, which I think I mentioned in my last post. My nurse wanted a picture of Laudy climbing on him and checking him out. I barely got the picture in time and it doesn’t look like he was enjoying it, but I assure you he did. (I guess this isn’t really from this week.)

This swallowtail butterfly looked a little worse for wear but seemed to be thriving on our aptly named butterfly bushes.

This yellow garden spider set up shop between one of the butterfly bushes and the fence. The reinforced center zigzag is amazing!

I’ve not had a lot of birds at the feeders lately and it’s been too hot to sit outside much, but I did get a snap of this friendly chipping sparrow.

We had a single day break in the heat so I took advantage of it and did my Bible study on the patio.

Later that same morning I rode my scooter around the lake in our neighborhood.

If you squint really hard you can see the bench on the other side where I often sit to watch dragonflies buzzing around. I only took one lens with me so I wasn’t able to get a picture of a ruby throated hummingbird going from flower to flower on the bushes to the right. It was pretty cool!

Hubby took me for a drive to try and get some pictures of a field of sunflowers a few towns away. The road was a little busy and I only had a few seconds to get a shot. It didn’t really work out the way I had envisioned it in my mind because I didn’t have time to get the exposure right. That, and there was also a real chance I might fall over because I had to step across a ditch along a fence row full of weeds and, of course, my balance is wonky. When I got back in the car I had burrs stuck all over my pants.

Although the pictures were an epic fail, I enjoyed riding around with my hubby that afternoon. Oh, and about an hour after we got home both of my eyelids and the bottom of my eyes turned red and swelled up to be about 1/2 an inch thick. They stayed that way for the next 24 hours! Ragweed, was that you??

Yes, I know, I lead a very exciting life 😉. I hope you have had a good week. See you next time! God be with you. ❤️, Amy

September 2021

Summer’s Lasting Vibrance

September 2, 2021September 2, 2021by amysaxons2 Comments

Hello, Friend! I hope you are well.

It’s been too hot around here to get out of the house much these last few weeks. However, I did ride my scooter early one morning down to the lake in our neighborhood to enjoy the dragonflies and flowers for a spell.

Blue dasher perfectly aligned on a blade of grass

Amber wing, easily my favorite dragonfly.

I braved the heat for a few minutes one day to get a pic of this lovely female cardinal hanging out in one of the birch trees behind our house.

Since I can’t get outside much I’ve been filling my time sewing. I got a new serger and have been absolutely floored by the steep learning curve. For the first couple of weeks I was convinced that not even NASA’s best could get the crazy thing to work consistently! I have read everything I could get my hands on and watched hours of YouTube vids in a determined effort to conquer and master the beast of a machine. Perseverance, about 15-20 hours of practicing on scraps, rethreading the booger, and adjusting knobs a million times AND…

I FINALLY figured out how to consistently get good seams on my serger! I made a cute nightgown that I love. I ordered this knit jersey on super clearance from Joann’s. The snails are very appropriate 😉.

I had my Ocrevus infusion yesterday so I’m fuzzy-headed with a bit of a headache. Around 4:00 this morning I started flushing from the steroids they served up to go along with it. I should start feeling better by tomorrow. For the first time ever I got to have the drug infused at home – so much easier for me! My newest bestie Bill, the infusion nurse, and I spent five quality hours chatting and sharing the ways God has worked in our lives. God is so good!

Thanks for stopping by. God be with you! ❤️, Amy

August 2021

Breath In, Breath Out

August 16, 2021August 16, 2021by amysaxons2 Comments

Sometimes I’m really proud of myself for being able to keep the rhythm of breathing going, such is the joy of MS fatigue.

In my last post I said I would try to write something about my MS, so here it is. Whew, this summer has been a challenge! I have had a smattering of a few good days here and there and even a few strung together in sequence, but more often than not I’ve been under the thumb of pervasive, domineering MS lethargy. Nope, it’s not the kind of tired that needs a nap and sitting to rest for a spell doesn’t shift it at all. Like having a bone dry fuel tank, no matter how hard you try to go, you end up getting absolutely nowhere. The engine won’t start, the wheels won’t go anywhere, the brakes won’t compress, the electric windows won’t budge… technically it’s a car, but it’s good for nothing. I still look like Amy on the outside but there’s no juice to animate me. The electrical wires of my nerves are stripped and the signals my brain tries to send to make my body move either can’t or only partially get through. As a result, I don’t walk right, my hands don’t work the way they’re supposed to, my bladder doesn’t know if it’s holding or letting go, my thoughts struggle to be strung into words, and my balance is all over the place making me stagger around like I’m drunk. Normal things like showering, getting dressed, eating, and even sitting up use inordinate amounts of energy because my nervous system is having to work 1,000 times harder than yours just to get the signals through. Some days, for some inexplicable reason, I spontaneously recharge fairly quickly and I get to do things other than basic human functions – these are my good days. Other days, most days if I’m honest, time passes from my favorite chair or lying in bed. I read, listen to audiobooks, put puzzles together on an app, watch TV, and snuggle with our cats.

MS and heat don’t mix, it makes all symptoms worsen, so I haven’t been on the patio taking pictures much the past few weeks. However, the past couple of days have been milder allowing me to snap a few pics of my feathered friends.

I’ve learned to love bluejays and all the sounds they make.

I’ve said it before and I’ll say it again, cardinals are one of the most beautiful birds of all!

Mourning doves are another personal fav.

The butterfly bushes we planted in the spring have more than doubled in size and smell wonderful!

There have been 5-10 hummingbird moths around the butterfly bushes all summer.

Hubby has just a couple more days before he heads back to work. This chore has been on his list and he’s glad to have it done. It’s still hard to believe God has blessed me with such a perfect guy ❣️

May God be with you! ❤️, Amy

July 2021

Rescinded and I’m Sorry

July 7, 2021July 7, 2021by amysaxonsLeave a Comment

Have you ever done something that you look back on a bit further down the road and wonder just how you could have been so oblivious? Well, I’m there. I shot straight up at 4:38 this morning and thought, “Copyright! I’ve broken copyright to Merrill C. Tenney’s The Genius of the Gospels“! I was going to post the notes I took on John today, but instead I took down my previous posts on the first three Gospels. Perhaps you were quicker on the uptake than I was. All I can say is I’m really sorry. It was such a good study, I got carried away and shared before thinking things through all the way.

So, back to the regularly scheduled programming…

My nephew came and stayed with us for a while last month. He made his Aunt very happy when he took my camera and, with his artistic eye, took pictures like a pro. Just look at his gallery!

Pretty impressive, eh?!

Here’s the young man himself.

Playing some Thin Lizzy with Uncle Todd.

The weather has been somewhat mild for our area this time of year so I’ve been able to get outside and take a few snaps. Heat and MS don’t mix so summer photo sessions are usually few and far between.