A Day (or Three) In My Life

Hello, Friend!  I hope you are well wherever you are when this post finds you.

I’m currently sitting on the back patio watching the birds on a gorgeous May afternoon.  I can hear cardinals, house finches, titmice, and blue jays calling, singing, squeaking, and buzzing from the canopy overhead and behind us.  Though it’s a warm, sunny day, there’s a lovely light breeze in the shade keeping me cool and bringing the last scent of quickly fading lilac across the yard to me.  It is a springtime feast for the senses!

Yesterday and today have been absolutely joyful days as my typically excessive MS fatigue has lessened and allowed me to be up and about more than usual.  So, naturally, I rode my scooter over to the lake in our neighborhood yesterday and soaked in some Vitamin D and the beauty of God’s creation around me.

American Bullfrog
Baby starlings waiting for Mom to come back with a meal.
This looks so peaceful, but…
… this is the reality.  I walked down to the water’s edge and, of course, MS gal lost her balance and stepped in the water 😜.
Weeds can be beautiful too!
Ladybug 🐞!

After I rode back home from the lake, I decided to sit under the birches in the backyard.

Isn’t this a delicious view through the treetops?
One of my favorite corners of the garden.
My Mother-in-law came for a visit last weekend and was watching the birds at the feeders when she suddenly exclaimed, “Turkey!”.  My Hubby caught this pic with his phone before it flew away.  I’ve seen several turkeys in the woods around our neighborhood, but this is the first one who’s ever flown over the fence for a visit.  It was quite exciting 🦃!
Blue Jay
My tripod broke last week and as I was waiting for the new one to be delivered, some of my favorite springtime visitors dropped by for a snack.  Rose-breasted Grosbeaks only stay in the Ozarks for a small window of time as they migrate north each year.  If I would have had a tripod the picture would have been sharper.  There’s always next year.
Cute, but greedy varmint.
Laudy’s turn to help me with my Bible study 😻
I think I had three PDF patterns that needed to be put together. It took several days last week to get the job done, but Pip and I persevered.
My sister asked me to make a dress for her from a pattern company I had never used before. Experience has taught me to try out a pattern before using precious fabric. I traced off my size onto butcher paper and am in the middle of making the dress for myself from fabric in my stash to check the fit. So far so good.
I used some of my energy yesterday to clean the kitchen sink with Soft Scrub. Aren’t the patterns pretty?
My Mom gave me this Chicago Metallic meatloaf pan several years ago. The raised insert allows the fat to drip through the holes, keeping the meat from getting soggy.
Hubby loves ketchup drizzled over meatloaf before it’s baked.
Dinner is served! Meatloaf, scalloped potatoes, salad, and homemade Rice Krispie Treat.
Laudy says, “That’s all, folks.”
So does Pip.

Thanks for stopping by. May God be with you! ❤️, Amy

Whew, What A Week!

When it rains it pours! Our dishwasher gave up the ghost Saturday morning (my birthday) and flooded the kitchen.

Thankfully, Hubby is a pretty smart cookie and got the water shut off.

He wrangled the dishwasher out of it’s nest and discovered the water lines from it were bad and the tub on the bottom had a crack.

Though we had to look for dishwashers on my birthday, we managed to squeeze in a yummy lunch at a delicious cafe/bakery. My favorite there is an almond croissant 🥐😋!

We found a replacement the same day and my Dad helped us get it home and supervised Hubby’s installation.

It was a lot of work, but Hubby got the job done and it was sealed with Pip’s approval. 😻

Pip playing with Hubby ❤️

Speaking of Pip, we have been dealing with a bit of a scare with him. Last month during his regular, annual check-up we learned he had a grade 2 heart murmur. Our vet referred us to the University of Missouri Vet Clinic to see a cardiologist to investigate the issue further.

It’s a three hour drive from Springfield to Columbia one way… it’s been a long day for us all.

She gave us some good news today that it looks benign and we are scheduled to go back next year to keep an eye on things.

Pip was still kinda stoned from the sedation on the way home. He curled up on my lap and insisted, by way of nudging my hand, that I rub his head the whole way ❤️😻.
Here’s a random picture of the lunch I made myself Monday.
In this month’s Universal Yums box they included a recipe for Belgian Meatballs, Hubby wanted to try them so I made them on Wednesday for dinner. I served them with baked new potatoes. Verdict? 😋😍👍
Our lilac tree is now bursting with blooms and filling our backyard with the most wonderful scent ever smelled. I took this picture last week just as one of the bunches was starting to open up.

The weather has been nice enough each afternoon this week and, despite pretty lousy MS fatigue, I’ve been able to make it onto the patio to watch the birds. They fill my heart with joy and gratitude to God for the wonder of His creation.

Northern Cardinal – male
American Goldfinch – female
Northern Cardinal – female
Downey Woodpecker – male
Tufted Titmouse
House Finch – male
White-Throated Sparrow
Sun on our River Birch
This photo collage of my sister and I popped up on my memories this week. I love my sister, she is one of my greatest blessings and my best friend ❤️.

Thanks for stopping by. I hope you have a wonderful day! May God be with you. ❤️, Amy

It’s Blooming Spring!

Can you see the spider’s web?
White-throated Sparrow
I love how the colors came out in this photo of a Common Grackle.
American Goldfinch
19 of Hubby’s cycling friends stopped by halfway through one of their rides for a cookie and water break.
Our sweet blue “Laudy” Laudanum Cornish Rex 💙
Our sweet chocolate “Pip” Cornish Rex 🤎
It’s always a toss-up of who will be first in the sling to help me with my Bible study each morning. Pip won this day.
😹
Behind the scenes when I’m birdwatching on the back patio.

Have a lovely day! God be with you. ❤️, Amy

Covid – It Was A Long Time Coming

It probably came home with Hubby from work. It was friendly and visited me while in the vicinity. The first five days were a nasty business for both of us. Hubby is better, though he still has a bit of a cough and tires easily. I took Paxlovid, got better, then got Rebound Covid. I am definitely feeling better, though I can’t get rid of the cough. I’ve nearly polished off my third bottle of Robitussin in two weeks. I must not be the only one out there on the ‘Tussin ’cause Hubby is beating the streets after work tonight to try and score me a fourth bottle.

Laudy and Pip didn’t miss a beat while Hubby and I had Covid. As you can see, they snuggled in and laid low right along with us.

Though my body had just started making B-cells again and I only had a few (see my last post), I was able to fight the dreaded virus and live to tell the tale. I praise God for His timing and the fact He made our bodies to be such hardy machines. This experience has proven it’s safe for me to venture back out into the world again 🎉🥳.

Mourning Dove
Eastern Bluebird
Coming in for a landing – Carolina Chickadee
Hopping off – House Finch
Northern Cardinal
Making some room in his crop – Blue Jay
Grabbing up a peanut – Titmouse
Not a flattering picture of me, but my parrot, Laudy, is adorable with her tail wrapped and tucked.
March’s Universal Yums arrived featuring treats from… BRAZIL!
I’ve been sewing during my convalescence. I made this flannel shirt using the Aria pattern by Love Notions (my favorite independent pattern company). I just need to get the buttonholes made and the buttons sewn on and it will be done just in time for St Patrick’s Day 💚!

I hope you have had a good start to March. May God be with you! ❤️, Amy

Through the Picture Window

Winter came to our backyard in January, she was exquisite ❄️.
White-throated Sparrow
Northern Cardinal
On the other hand, these easy home-made whole wheat english muffins are one of my favorites. I frequently make a double batch of these and stick them in the freezer for a toasted breakfast delight. If you’d like to try them, I’ve snapped pictures of the recipe and added them below 👇.

At the end of January I had a blood test to see if my immune system was rebuilding itself after stopping my MS treatments about a year ago (March 1st to be exact). The good news is yes, I have some nascent cells emerging. The bad news is I don’t have very many. I’m still immunocompromised, but the tide is slowly turning 🥳.

My MS has been all over the shop. Two weeks ago I had a string of good days and was able to cook and sew and putter around the house. Yesterday afternoon I couldn’t sit up or hold my head up and spent hour after hour in bed. Today, I’ve been able to sit up and ride around the house on my scooter, but my legs are like concrete and won’t work. Tomorrow? Your guess is as good as mine. The only predictable thing about MS is its unpredictability.

Laudy and Pip finishing my oatmeal a couple weeks ago 😆.

Thanks for staying tuned and stopping by. May God be with you! ❤️, Amy

2023 Beginnings

Watching the water flow at the lake in our neighborhood park.
MS gal and her scooter
Beauty in death and a promise of what will be again.
Even the sun’s rays were windy 💨
My favorite bench
Pretty corner in our backyard
I decided to clean out the empty bird boxes for the season…
… and found the partial remains of a Carolina Wren egg 🧡.

Hubby and I celebrated 17 years of wedded bliss last week 💞. First thing he did that morning? Cleaned the windows so I had a better view of the birds. Love and happiness – just look at that smile – are found in the doing of little things.

May you find your greatest joy in Christ this year and always. God be with you! ❤️, Amy

Where Have You Been and Where Are You Going, Amy’s Axons?

Mellow sunshine through river birch leaves

Hello friends! It’s been a while. Today is a good MS day so I thought I’d write a wee bit.

As you can see…

… I’ve been enjoying the butterfly bushes we planted just last spring. It’s easy to say they love the corner of the yard we chose for them.

I’ve only ventured to the neighborhood lake once since the last time I posted pictures. Sadly, our neighborhood lost their groundskeeper and they’ve not had much luck finding a consistent replacement. As a result, the lake is looking pretty weedy and rough. I know they will get it sorted sooner or later, so I probably won’t hang out much over there until it’s cleaned up. However, I was able to get a shot of a beautiful blue dragonfly.

I’ve spent quite a bit of time watching the birds at our feeders and on the trees at home. Shocking, I know 🤭.

This is the last chipping sparrow still here before migrating.

So, on to the main thing. I’ve really been thinking about my blog these past few months. As you can tell if you’ve been following Amy’s Axons for very long, I haven’t been posting much.

Getting ready for takeoff!

Soon after taking full-time retirement in February of 2019 I started my blog as a way to stay busy and feel a bit of a connection to the world. I wrote quite a bit the first year or so before changing the format to more of a photo album of my life.

The first hummingbird feeder I ever put out and I got a trio of hummers within the first week 🥳!

Since getting my Canon Rebel t8 it has felt like a whole new world of opportunities has opened up. Photography has become a very fulfilling pursuit and outlet for the artistic side of my personality. It has meshed beautifully with my love of birding.

This female cardinal has almost finished molting.

Something has been missing, though. I feel like I should be and want to be writing more and not just relying on photos to fill the space. I suppose I feel a bit intellectually lazy, but mostly I feel reluctant. It isn’t for a lack of topics – I’ve thought about writing on a host of different subjects and have even fleshed some of them out in rough drafts. But, the climate of the world and its intolerance of free ideas has left me cold and I realize I will never publish any of them.

Red!
A house finch convention 🤝

There is one exception: I’m not reluctant or afraid to defend my faith and belief in God, not here online or anywhere else. I know Jesus Christ is the only true Son of God, that all scripture and prophecy pointed to Him, that He fulfilled all prophecy and came and died as an atonement for our sins, that He rose from the grave on the third day and later ascended into heaven, that He will come back, we all will be judged before God the Father by whether or not we have named Him as Lord of our lives and lived according to His Word, and those who are His will spend eternity with Him and God our Father, while all who have not named Him as Lord will be eternally condemned. (Please let me know if you want to know more about Christ, I’d love to talk to you about Him!) It’s everything else that can’t be said without censure. I don’t want to be trolled and fight the nastiness of the world online.

White-breasted nuthatch
Downy woodpecker

I have never had a bad experience here on my blog, probably because I haven’t shared my thoughts on serious subjects. Looking back, I think I thought I would when I started Amy’s Axons. I realize now that I never will share them in this type of forum because it’s too impersonal for me to feel comfortable. If I’m ever going to discuss sensitive topics, I want it to be within a personal relationship with my conversational partner(s) so we can still feel the tie of humanity between us. The respect of equality of mind, though different conclusions, is essential to talking through viewpoints that are at odds between people.

Black-capped chickadees are so fun to watch ❤️
I’ve had several bluejays at my suet feeder these past several weeks. They are noisy critters but absolutely striking to watch.

Anyway, I don’t know where I’m going with this blog anymore. I haven’t decided if I will continue it or if I’ve outgrown the need I had for it when I started it. I suppose time will tell and you will know as soon as I do 😉.

This crow sat in our neighbor’s tree across the street for several hours a couple of weeks back and cawed and cawed and cawed some more into the silence. Finally, as I was packing my things up to go inside, it got a response and flew away to find the voice that had answered. I haven’t seen it since. 🤔

Whether I continue my blog or not, I want to thank you for being here. Thank you to those who have stayed from the very beginning, I truly appreciate your interest and care about my life, particularly those who have prayed for me over the years. And thank you to those who have joined somewhere along the way, knowing you felt like this was worth joining in on has given me great joy.

May God be with you! ❤️, Amy

Too Hot To Bother and MS Update

As you can see, my life has revolved mostly around our cats Laudy and Pip. That’s as it should be for a crazy cat lady. I did squeeze in making some delicious English muffins; they didn’t last long. They were especially good with some Tiptree Raspberry Jam made in England 😋.

Southwest Missouri has been in the grips of a severe drought this summer made worse by excessive heat over 100°F these last couple of weeks. As a result, I’ve not been out of the house much because MS and heat don’t mix well. Summer has traded her usually lush green frock for a drab yellowish-brown garb that isn’t nearly as attractive. We may get some rain later this week, it’s gotta come sometime!

The MS Update Part: You may remember that a few years ago I started taking a drug for my MS named Ocrevus. It was an IV infusion given every six months and I was able to get the last couple of doses at home through home infusion nursing. Well, after a lot of prayer and discussion with my neurologist, I have decided to stop taking the drug. This will be the first time in 26 years that I will not be on a disease modifying therapy. My disease has continued to progress, in the normal course of things, to a place where there are no current drugs to treat it. I’ve known I’ve had Secondary Progressive MS for the last few years but opted to treat it with the drugs available for Relapsing Remitting MS because nothing else was available. Ocrevus has some significant side effects when used long-term and I’ve reached the point where the risks outweigh the benefits. Not everyone with MS may agree with my decision but, for better or for worse, no one else has to live with the results but me. As always with MS, no two people have the same disease progression or outcomes. Though I appreciate the concern and good will of others, please don’t send me articles and cures to try. I am probably already aware of whatever you’ve found on the internet or what your aunt’s cousin’s friend’s dad tried and how it “cured” him. I chose to educate myself about MS as soon as I was diagnosed and have stayed on top of research as well as drugs, diets, and homeopathic interventions ever since.

I am quite at peace with my decision, I’ve known this was coming for a long time. I’ve had 32 years to get used to my MS, we’ve sort of grown up together and understand each other 😉. As always, I appreciate your prayers. Considering how long I’ve had MS I know I am doing very well related to many others. I can still walk some for short periods of time and I can independently take care of most of my daily living needs. My wonderful hubby is my right hand and I know God gave me a tremendous gift when He gave Todd to me. My sister and Dad are always ready to help at the drop of a hat and my Mom-in-law is only a phone call away and has come to the rescue on more than one occasion. I also have a loving and supportive church family, as well as good friends who care and always offer to help me whenever needed.

Thanks for coming by to catch up today, I know it’s been a while since I last wrote. When things cool off a bit I’ll probably be more likely to post more often. May God be with you! ❤️, Amy

A Week In My Life

Sunday was a beautiful day in the Ozarks so Hubby took me for a drive after church.
First thing Monday morning one of our cats puked her breakfast all over the blanket on our bed. So, laundry.
I listened to some classic rock while sewing up a tote bag on Monday.
One of Hubby’s work friends has been sharing with us some of the surplus eggs her hens have been laying. She loves the St. Louis Blues, so I found some themed fabric and made this up for her.
I don’t care about hockey, but I love the yellow and blue together.
Tuesday afternoon I rode my scooter to the little lake in our neighborhood and took a few photos.
Wednesday was a rest day. Pip and I watched the birds together 🥰.
After work on Thursday, Hubby and I went to my Dad’s for dinner. Hubby then helped Dad clean out the gutters and…
…weed eat.
Dad worked hard too.
I sewed up a couple more totes on Friday. I think I’ve now made 13 bags from this pattern over the last year.
The cupcakes look yummy 😋!
I love the pockets, they make the bag very versatile.
Friday was a tough MS day with very limited energy. I was pretty proud that I was able to get the kitchen cleaned.
Today, Saturday, has been another MS dominant day. I sat on the patio this afternoon and enjoyed watching the birds and this little fella.
I think squirrels are funny and cute, though I know they can be pests.

I hope you are doing well. God be with you! ❤️, Amy

Hello, Again

Hello, again.

The last time I posted I told you I had a relapse of my MS and was getting ready for a few days of steroid infusions to try and hasten recovery. Sure enough, it happened and my symptoms have improved. My left eye stopped twitching and feeling numb, I can move my legs again and walk with less of a shuffle-stumble sort of thing. My energy level has improved to allow me to be up for more than 3-5 minutes at a time. Things are still not back to where they were before, but I’m hoping the trajectory continues to move up.

The IV was placed right where my wrist bends, not ideal. It was a long three days.
Hubby made me a “splint” to remind me not to bend my wrist. It worked a treat other than the fact I had a piece of wood there day and night. I cut a sock and used it to keep my splint in place.

Huge doses of steroids given in a short time creates numerous icky side effects – one of the worst for me is flushing of the skin. That being said, the side effects during the infusion are nothing compared to the slam your body takes when your last dose is done. Agonizing, insipid, catatonic-like fatigue reigns for about three days while your skin hurts to the touch and your muscles ache down to the bone. Slowly, the goo seeps out through every pore of your being and, around day four, you sense you are morphing back into feeling like a human.

I’m so thankful it’s all behind me now. It’s been four years since I had a relapse necessitating steroids. Yesterday marked four years since I completely retired due to MS and April will mark 32 years since my diagnosis. I’ve never felt bitter about this disease nor thrown my fist in the air screaming, “Why me?”. I think a better question is “Why not me?”. Everyone has some struggle to deal with in life. There’s no such thing as luck, good or bad. There is such a thing as attitude, though. As Philippians 1:27 says, “Whatever happens, conduct yourselves in a manner worthy of the gospel of Christ.” Though “whatever happens” here is in reference to whether Paul can come to visit the Philippians or not, he goes on, in the same verse, to tell them, “Then, whether I come and see you or only hear about you in my absence, I will know that you stand firm in the one Spirit, striving together as one for the faith of the gospel.” No matter what diseases, frustrations, difficulties, or unexpected troubles come our way, we are to respond with a Christlike attitude that brings honor and praise to the glory of God.

Nothing makes me think of God more than His creation.

Carolina Wren
American Goldfinches
Tufted Titmouse
Lucky shot 📸
Carolina Chickadee
White-breasted Nuthatch
Fisheye lens through our birch trees.
Hubby threw some eggs in the yard and some American Crows enjoyed them. I love all birds.
Blowing in the wind…
… beautifully.

I hope you are doing well. May God be with you. ❤️, Amy