For there is one God and one mediator between God and mankind, the man Christ Jesus. ~ 1 Timothy 2:5
One more post has come to an end. ❤️, Amy
One Singular Sensation!
Tag: MS
A Week In My Life
Although the pictures were an epic fail, I enjoyed riding around with my hubby that afternoon. Oh, and about an hour after we got home both of my eyelids and the bottom of my eyes turned red and swelled up to be about 1/2 an inch thick. They stayed that way for the next 24 hours! Ragweed, was that you??
Yes, I know, I lead a very exciting life 😉. I hope you have had a good week. See you next time! God be with you. ❤️, Amy
Summer’s Lasting Vibrance
Hello, Friend! I hope you are well.
It’s been too hot around here to get out of the house much these last few weeks. However, I did ride my scooter early one morning down to the lake in our neighborhood to enjoy the dragonflies and flowers for a spell.
I braved the heat for a few minutes one day to get a pic of this lovely female cardinal hanging out in one of the birch trees behind our house.
Since I can’t get outside much I’ve been filling my time sewing. I got a new serger and have been absolutely floored by the steep learning curve. For the first couple of weeks I was convinced that not even NASA’s best could get the crazy thing to work consistently! I have read everything I could get my hands on and watched hours of YouTube vids in a determined effort to conquer and master the beast of a machine. Perseverance, about 15-20 hours of practicing on scraps, rethreading the booger, and adjusting knobs a million times AND…
I FINALLY figured out how to consistently get good seams on my serger! I made a cute nightgown that I love. I ordered this knit jersey on super clearance from Joann’s. The snails are very appropriate 😉.
I had my Ocrevus infusion yesterday so I’m fuzzy-headed with a bit of a headache. Around 4:00 this morning I started flushing from the steroids they served up to go along with it. I should start feeling better by tomorrow. For the first time ever I got to have the drug infused at home – so much easier for me! My newest bestie Bill, the infusion nurse, and I spent five quality hours chatting and sharing the ways God has worked in our lives. God is so good!
Thanks for stopping by. God be with you! ❤️, Amy
Breath In, Breath Out
Sometimes I’m really proud of myself for being able to keep the rhythm of breathing going, such is the joy of MS fatigue.
In my last post I said I would try to write something about my MS, so here it is. Whew, this summer has been a challenge! I have had a smattering of a few good days here and there and even a few strung together in sequence, but more often than not I’ve been under the thumb of pervasive, domineering MS lethargy. Nope, it’s not the kind of tired that needs a nap and sitting to rest for a spell doesn’t shift it at all. Like having a bone dry fuel tank, no matter how hard you try to go, you end up getting absolutely nowhere. The engine won’t start, the wheels won’t go anywhere, the brakes won’t compress, the electric windows won’t budge… technically it’s a car, but it’s good for nothing. I still look like Amy on the outside but there’s no juice to animate me. The electrical wires of my nerves are stripped and the signals my brain tries to send to make my body move either can’t or only partially get through. As a result, I don’t walk right, my hands don’t work the way they’re supposed to, my bladder doesn’t know if it’s holding or letting go, my thoughts struggle to be strung into words, and my balance is all over the place making me stagger around like I’m drunk. Normal things like showering, getting dressed, eating, and even sitting up use inordinate amounts of energy because my nervous system is having to work 1,000 times harder than yours just to get the signals through. Some days, for some inexplicable reason, I spontaneously recharge fairly quickly and I get to do things other than basic human functions – these are my good days. Other days, most days if I’m honest, time passes from my favorite chair or lying in bed. I read, listen to audiobooks, put puzzles together on an app, watch TV, and snuggle with our cats.
MS and heat don’t mix, it makes all symptoms worsen, so I haven’t been on the patio taking pictures much the past few weeks. However, the past couple of days have been milder allowing me to snap a few pics of my feathered friends.
May God be with you! ❤️, Amy
Rescinded and I’m Sorry
Have you ever done something that you look back on a bit further down the road and wonder just how you could have been so oblivious? Well, I’m there. I shot straight up at 4:38 this morning and thought, “Copyright! I’ve broken copyright to Merrill C. Tenney’s The Genius of the Gospels“! I was going to post the notes I took on John today, but instead I took down my previous posts on the first three Gospels. Perhaps you were quicker on the uptake than I was. All I can say is I’m really sorry. It was such a good study, I got carried away and shared before thinking things through all the way.
So, back to the regularly scheduled programming…
My nephew came and stayed with us for a while last month. He made his Aunt very happy when he took my camera and, with his artistic eye, took pictures like a pro. Just look at his gallery!
Pretty impressive, eh?!
Here’s the young man himself.
The weather has been somewhat mild for our area this time of year so I’ve been able to get outside and take a few snaps. Heat and MS don’t mix so summer photo sessions are usually few and far between.
All my best to you and may God be with you! ❤️, Amy
A Bumpy Ride on the MS Bus
Hello, friends, it’s been a while. I’ve tried to write a few times but my thoughts have been all over the place. It’s hard to write intelligibly when you’re being jostled every which way riding at the back of the MS Bus over rough terrain. I’ve had some smooth spots here and there but there have been plenty of pothole infested gravel roads that have caused the wheels to come completely off.
I think the worst day was when I had wandered out onto the patio to watch the birds and got stranded for close to three hours. I was home alone and knew I was tired but misjudged the severity of it and entered a sort of locked-in state unable to move and get back into the house. There were birds a plenty at the feeders that day to keep me company, as well as butterflies and bees visiting the then blooming lilac bushes. However, as I rounded into the second hour, my bladder started to send a signal that became a blur of non-stop, unbearable …—… It was a true cliffhanger! Would my legs recover enough to get me inside before I lost control of my bladder?!? I’m happy to report that thirty minutes later, at the end of my bladder’s tether, my legs kicked in and saved the day!
Per usual, I’ve been snapping a few pics of the birds around the house. I was finally able to put the feeders up again about two weeks ago with no signs of sick birdies. I sure missed my little feathered friends! A pair of house finches made their nest on the wreath on the front door. Their brood of six have all made it so far, as you can see below. Mom and Dad have been keeping the nest floor clean by putting the little nippers’ poo on the edges of the nest. That will be fun to clean up 😝.
Here are a few of my favorites from the backyard.
Thanks to many of you, I am thrilled to report that I came in first among the local MS Walk fundraisers! From the bottom of my heart, I am truly grateful.
The ride is getting bumbier all of a sudden and I am going fuzzy again. I hope you are doing well and enjoying the beauties God has made all around you. ❤️, Amy
April Showers of Blessings
Thanks for following along to the end of this post. May you go with God!
Through My Lens
Today is March 20th, the first day of spring, and that means my Grandpa Frank would have been 129 years old today. Happy birthday, Grandpa ❤️!!
I hope you have a wonderful day and get out to enjoy a bit of nature wherever you are. God be with you! ❤️, Amy
The Day After I Toothed My Brush
I was wiped out after 8 1/2 hours at the hospital getting my 4th Ocrevus infusion yesterday. The first three hours were spent waiting for the pharmacy to compound the drug and get it up to the unit for me to take. At a whopping $100,000 a pop they won’t start getting it ready until the nurses call and say they see the whites of my eyes.
My head ached all afternoon and evening and I struggled to make sense. My favorite was when I told hubby I had “toothed my brush”and was ready for bed…at 8:30. I slept pretty good until about 4:40 this morning. – thanks, steroids I laid in bed daydreaming while snuggling Laudy and finally gave up and got out of bed around 5:40. I’d had three cups of coffee, eaten breakfast, read the news, showered, and was dressed all before I normally get up.
It’s been a long, slow day of flushing from the steroids and a still relentless headache as a side effect of the Ocrevus. It usually takes about 3-4 days to feel normal again. In the meantime, my arms are full of cats and there are plenty of birds at the feeders to entertain us.
I’ve pasted a link to my personal Walk MS page. Please consider making a donation, it would mean so much to me ☺️. I’m already a little more than halfway to meeting my $1000 goal. It’s way past time to find a cure! https://secure.nationalmssociety.org/site/TR/Walk/KSGWalkEvents?px=18236733&pg=personal&fr_id=31565
Thanks for stopping by. May God be with you! ❤️, Amy
A Hairy Situation
WARNING: The following is an extremely exaggerated, fanciful description of a much less exciting story. No one was injured in the actual exploit. Names are not used to protect the identity of those involved.
She opened the top drawer of her cabinet and paused thoughtfully. She ran her fingers over the neatly aligned collection of scissors of various sizes, thicknesses, brands, and purposes. Nothing there seemed quite right. Suddenly, I saw the flash of inspiration turn her usually dull, milky-garnet eyes into lustrous gems. She quickly closed the drawer, bent down, reached under the cabinet, and pulled out a large plastic case. I heard the release of two clasps as she opened it on the ground directly behind me. Strangely, I noticed a faint whiff of gasoline mix with the scent of hairspray, botanical shampoos, and foamy mousses.
With absolutely no warning and the simultaneous feeling of fight or flight that only true terror can create, the whine of a two-stroke, single engine weed eater filled the retail space. The din reverberated off the mirrors, tiled floor, and rows of adjustable metal chairs. A deafening “thunk-tunk, thunk-tunk, thunk-tunk” whirred into life and ramped up into a high pitched scream just over my right shoulder. It swiftly came closer until I felt the very hair on my neck begin to move. I could tell the length of trimmer string was too long and was flicking past the protective case, like the tongue of a cobra tasting the air. Instinctively, I pulled away from the droning sound and was nearly out of the chair when I heard the stylist’s voice filtering somewhere through the bedlam. “Don’t worry, I know what I’m doing. I’ve done this hundreds of times and you’re going to love it!”.
Was she like a chainsaw artist and could sculpt ordinary hair into a beautiful pixie cut with this outrageously deadly tool? After all, I’d shown her a picture of what I wanted. Wasn’t that her license hanging right in front of me on the mirror saying she knew what she was doing?
It’s strange how much faith we put in a little slip of paper with an embossed seal. It gave me the courage to sit back down. As I felt the first chunk of hair whacked off, I squeezed my eyes as tightly as I could and hoped for the best. Thirty minutes passed and I was still alive when she told me she was done.
Because it was a really tired MS day and I didn’t want to be out any longer than absolutely necessary, I got a wet cut without having her blow out my hair and style it. I don’t know if she was trying to cover up the mess, but she showed the back of my hair to me through a small hand mirror. The little bit I saw looked pretty short but okay.
When I was about 10 years old I remember my Mom telling the stylist to cut my uber thick, long, blonde hair into something more manageable. Somehow the lady translated that into a female mullet. I cried uncontrollably until Mom took me back an hour later and had the stylist rid all traces of Liza Minnelli from my head. I haven’t felt like crying about my hair for 40 years. I tell that story because this is what I saw when I got a closer, fuller view in the mirror at home…
Obviously, I couldn’t leave it like that and I certainly wasn’t going to go back and let her take another whack at it (😜😂). Though I’ve trimmed up my own hair before, this was way beyond my skills. Besides, it’s hard to see what you’re doing through misty eyes. So, I ended up going to my Hubby’s barber. Though I had to wait my turn for two hours, he was able to get me in on the same day as the disast-hair and, well, see for yourself…
Ahh, much better! Hey, local friends, do you have any recommendations for a good stylist who can handle short hair?
Photos from the last few weeks.
We have had some beautiful birds at the feeders this week. These are a few of my favorites.
I had a moderate amount of energy on Monday so I decided to squander it by going to the lake near our house. (And I do mean squander. I’m still recovering 😒.) Though it was still a bit cold, the sun was shining and it felt good to sit in it by the edge of the water. The lake was still frozen over but the ducks and geese didn’t seem to care.
I’ve been practicing using portrait mode with my camera this week. It’s impossible to take a bad picture of these two beauties 😻!
I get the next dose of Ocrevus for my MS on Monday of this coming week. I have to wait three months after I get the infusion, but then I will FINALLY be able to get a Covid vaccine, Lord willing. I wish you health and happiness! ❤️, Amy
Amy's Axons 