
























❤ Amy
Living life with Multiple Sclerosis

























❤ Amy
We’ve seen the perfect blend of summery sun and rain here in Southwest Missouri this past week. We’re usually roasting in nearly 100*F/38*C by this time in August, but we’ve had gorgeous 77-80*F/21-27*C days. Thanks to the recent weather, nature is lush and bursting with color all over the place around us! The forecast says it will only last another day or two, but it has been a delicious treat while it lasts and a balm for these many months during Covid-19.
A large forested area lies both north and south of our neighborhood with a good sized river about a mile down the road. It has both a well-maintained river access spot and, a little further down the road, an old, reallocated bridge that serves as the entrance for a greenways trail that winds through and circles our city. Additionally, our neighborhood has a little landscaped lake with a walking path, bridge, water feature, bird houses, and a bench along the shore. On Wednesday of this last week MS kindly lent me a decent enough day that I drove to the river in the morning and spent some time soaking in the views from the bridge at the trail’s head. After lunch, I headed off for a lovely, cane-assisted stroll around the lake. There were butterflies everywhere in both places! They somehow managed to lift my spirits on their tiny little wings and carry them about as they soared around and flitted and fluttered here and there. Similarly, as I rested a couple of times on my way around the lake in the afternoon, I found myself smiling as I tried to follow the dizzying courses of dozens of dragonflies going nowhere and everywhere at once. What funny little creatures! Oh, and don’t worry, there are plenty of bird and cat photos below too😻!
This past Friday was an exciting day when…my new camera arrived!!! As you peruse the photos below, see if you can guess which ones I took with my point-and-shoot and which ones were with my new DSLR. The new camera inspired me to branch out and find a new photo editing app to play around with. It’s pretty safe to say I have a lot to learn. As an example, I hadn’t been messing around with the camera for more than five minutes before I realized I needed to invest in a more versatile lens. Some lessons are pricey 😉! No worries though, I am having fun and can’t wait to learn and grow my skills (and lens collection!). It was time for the upgrade because I needed another sit-down hobby to add to my arsenal of things to do when the MS monster has me lashed to the couch.
Speaking of MS, my next Ocrevus infusion is at the end of this month. Let’s see, this will be my second full dose which means I’ve been on it for 18 months. For the first time since starting it I think I’m experiencing the “crap gap” I’ve heard other MSers describe just before their next dose. My already ridiculous fatigue intermixed with poor balance, endurance, gait, bladder issues, clumsiness, sluggish word finding, and occasional cog-fog have all ratcheted up to the next level over the last few days. I hope topping the tank with more O-juice knocks my symptoms back down to the previous notch.
Part I: Riparian and Lakeside Entertainment




































Here we are at the end of another blog. I looked back and realized I have been posting weekly lately. I didn’t mean to, or not mean to, it just happened. Will there be another blog next week? Maybe, I guess we will both have to wait and see😁. Either way, I’m glad you stopped by for a look-see. May God be with you! Amy
At lunchtime I bought a huge orange —
The size of it made us all laugh.
I peeled it and shared it with Robert and Dave —
They got quarters and I had a half.
And that orange, it made me so happy,
As ordinary things often do
Just lately. The shopping. A walk in the park.
This is peace and contentment. It’s new.
The rest of the day was quite easy.
I did all the jobs on my list
And enjoyed them and had some time over.
I love you. I’m glad I exist.
~Wendy Cope
Oranges are my favorite food. Orange is the color for MS Awareness. I love poetry and Wendy Cope writes good stuff. Titles for my blogs are always kind of hard to settle on, but this one was easy. And so, it occurred to me that it must be time for a post.
Besides, daily and ordinary things are important. Tethers feel good when life is pitching up the sea all around you. Maybe your ordinary day looks different than it did at the beginning of the year (cough – Covid), but I hope you have found some level, familiar ground upon which to walk. Everything is pretty much the same as before for me thanks to my parasitic sidekick MS. It’s been doggone hard to walk the past couple of days, so I’m especially grateful for the little things that help me get through the endless hours of sitting.
Cue a few of the pictures I’ve taken this week.
Part I. Light






Part II. Birds












































Part III. Cats


Part IV. MS


Part V. The Orange

I hope you have a “huge orange” kind of day. God be with you! ~Amy
There I was having a perfectly good day last Saturday riding around with my hubby as he ran into a couple of stores for our weekly shopping, when all of a sudden I felt a familiar pain in my lower tummy. Within just a few minutes I felt the next stage of an all too familiar urge hit and I knew before we made it home I had a UTI.
Fun Fact: One of the most common symptoms of MS is bladder control problems. The bladder has spasms and won’t empty completely causing frequency and urgency. Because the bladder won’t empty completely, MSers get a UTI very easily.
Anyway, my suspicion was validated at urgent care that same Saturday afternoon and I came home with the usual round of antibiotics and some Azo to ease the pain. I typically feel better within 24 hours, but when things felt worse by Sunday evening I knew we needed to go back to see what was going on.
A kidney infection was what was going on. I got a different script for a stronger antibiotic for the next seven days and then a thigh-full of another one. They warned me it would hurt as they added Lidocaine to the concoction and said it would take about 30-40 seconds to give because it was “thick”. I made it through the shot, but then nearly passed out 🥴. My blood pressure dropped too low very suddenly, I got all sweaty, and felt myself going. No big deal, I recovered and they let me go within another 30 minutes. Passing out was nothing compared to the pain throbbing through my thigh! With hubby dragging me by one arm and my cane propping me up to stay vertical with the other, I limped and whimpered my way to the car and thought, “That shot better be worth it!”
I’ve had lots of UTIs, but this was my first kidney infection; I wasn’t quite ready for how hard it kept hitting and how long it took to feel better. By Wednesday I knew I was going to live and felt back to my normal self on Thursday.
During the time it took to recover, I didn’t do much. I filled the lethargic days by hanging out with and generally loving around on the cats, reading an Inspector Morse mystery, listening to Dickens’ Bleak House, putting some puzzles together on my favorite puzzles app, and sleeping a lot. Finally, on Thursday and Friday, I ventured back out on the patio for short bits in the mornings and evenings – to avoid the heat, another no-no when you have MS – and even managed to muster the energy to sew a cute little tunic with an adorable cat print for myself!
There is a river just a mile and a half down the road from our house with a lovely bridge and trail from which to admire nature. Hubby humoured me and took me for a while around noon on Friday. Though I can’t walk the trail anymore, we traversed the bridge and took in all the special delights that fill the senses when around running water. Birds chirping, breezes blowing, water rippling, the faint whiff of fish in the air, the sight and smell of earth and dirt eroding, tree roots erupting on trails down to the river banks, and the beauty of wildflowers clustered along the banks and in the undergrowth, or definitely blooming in solitary confidence and glory.
It feels so good to feel better! It was a good reminder to appreciate my general health, despite the MS. I’d take a lot of crummy MS days over going through that again any time soon. I hope you enjoy the pictures below and are able to get a sense of their feel and place for the ones not captioned.













































I hope you have a wonderful week ahead. God be with you! ❤️
Sick of the world? Me, too. Let me divert you.
I like looking at YouTube videos and other blogs that chronicle the everyday activities of someone else’s life. It’s both reassuring and fun to see that we all basically have the same rhythm to our lives that encompasses everything from humdrum chores, to work, to family ties and responsibilities, and an innate need for some kind of leisure activity or down time. This sameness, no matter where we are from or what we look like, reminds us we are all created in the image of God and that He has bound us to need each other as humans.
So, with that in mind, let me take you through some of the things I’ve been up to lately. Along the way you will find some cats, a brief snapshot of the music I’ve been listening to, a little sewing project, and a few meals. Of course, there will be a fair few birds, too.
I think I’ve learned some important lessons while photographing wild birds that have resonated with me as pretty good general advice for life, especially at this time. 1. Be patient, nature works on its own schedule and at its own pace. 2. Always be ready, opportunity only lasts a few seconds . 3. Only about 10% of the media (in my case, photos I take) is worth keeping, the other 90% is missing the picture and destined for the trash can. 4. Remember that everything you see on your screen is only what you can see through the lens, you have to look up to get the whole picture. Conversely, not everything in the big picture is worth focusing in on. 5. Keep a sharp eye out for the things that are beautiful and zoom in on them.
(Yep, I like Monty Python. If you have to ask what I mean, don’t bother.)































































I didn’t know MS recruited, but it seems that it recently acquired the mythical legend Hercules to it’s dark side. I guess he took a shine to my electric toothbrush because it certainly feels like I am in an all-out, do or die wrestling match against some kind of superhuman force the entire two minutes it runs. Oral hygiene shouldn’t require a 10 minute power nap to recover from, right? It’s been so long since I’ve experienced “normal” energy that I can’t remember.
Anywho… despite insipid fatigue, life has crept quite happily along. Because I have the best hubby and sister in the world, they each drove ten hours both ways (!) so I could spend a week staying with my sister in Texas. We didn’t do anything or go anywhere because CV-19 is crazy in Austin at the moment, but we had fun anyway and I love spending time with them all.







(L-R) chocolate, raspberry-white chocolate cheesecake, red velvet, lemon.
Other than having to start a diet when I got home, everything else fell back into place like I had never left. I still have the sweetest hubby and cats one could ask for and the birds are as photogenic as ever. Oh, and a squirrel has found the feeders. He’s cute now but he probably won’t be if he decides to invite his friends.










A few days have been nice enough I have been able to spend time outside, but heat and MS don’t mix so I’ve been indoors a lot more than I would like. I’ve had extra entrenched primary MS fatigue which has made it hard to do much. (Primary fatigue is thought to be due to nerve messages from your brain and spinal cord having to navigate the areas of damage caused by your MS. It takes more energy to send and deliver messages to other parts of the body, like the muscles in your arms and legs, causing a build-up of fatigue. – mstrust.org.uk). However, it feels good to be back home and I have books that need reading, shows that need watching, puzzles that need putting together, music that needs listening to, and apps that need playing.
Stay safe and God be with you!
The whole world is mad enough to chew nails and spit rivets at each other. The wildfire of anxiety already fueled by a viral pandemic and financial hardships has roared into an inferno fanned by outrage over racial injustice. Add all of this to an overly politicized, deeply divided, radically idealized, and seemingly diabolicaly opposed Left and Right presidential election year and, voila, here we are. McCarthyism (“The practice of making unfair allegations or using unfair investigate techniques, especially in order to restrict dissent or political criticism.” – Dictionary.com) turned into Cancel Culture (“The popular practice of withdrawing support for public figures and companies after they have done or said something considered objectionable or offensive.” Dictionary.com). Unsurprisingly, we (collectively as humans) have learned absolutely nothing from God or history on how to get along with each other. Like sheep, we’ve all gone astray. The only difference between us and sheep is that we like to point and call out the wrong courses everyone else has taken, but never look back at our own errors.
As a result, I’ve been rationing my news intake and limiting my time on social media platforms. I can’t take all the lava-hot words and vitriol spewing out of the mouths on all sides of the world’s current, self-inflicted problems. I don’t know how to heal or even understand the differences of opinion and the vast chasms that seem to lie between the logic and thinking of some of us. So, with that admission, what can I do? I have been and will continue to lay them down at my Father’s feet. He is the answer to everything, always. God excels in doing what everyone says is impossible.
I’m doing the same on a personal level. While the huge fires of the world keep burning, so too do the little flames within my life. I’m sure you understand because we’re all the same. My personal fire is called MS but yours might be named such things as Furloughed, Job, Money, Stress, Anger, Divorce, Death, Parent, Child, Spouse, Cancer, Diabetes, Aging… just about anything, really. For me, MS is constantly melting away tiny pieces of my own sovereignty. It’s very difficult to let go of the things in life that make you feel like you have some control, such as driving, shopping, cooking, and walking.
In much the same way that I realize I can’t put out the MS fire in my own life and deal with the destruction it leaves in it’s wake on my own, we, as a nation and even world, must understand we will have to work collectively to bring the flames of our society back under control. The solution will not be conceived in fear of an unseen germ, worry over the next great depression, or riots that break our neighbors’ windows and loot their livelihoods because of injustice. No, if it could then we would already have the answer. The fix is to be found in love. The kind of love the apostle Paul described in I Corinthians 13:4-7, the sort God has for us. His love is patient, kind, happy for others instead of envious, lifts others up instead of boasting about self, is well mannered instead of rude, seeks the good of others instead of self, is slow to anger, keeps no records of wrongs, delights in holiness instead of evil, rejoices in the truth instead of sensationalism, always protects, always trusts, always hopes, and always perseveres.
I realize what I am about to say is very Pollyannish of me, but… If every person would recognize the truthfulness and wisdom of this type of love and make it their own personal goal to practice it, without policing others and how they are doing as they attempt to do the same, all the infernos of the world would simply burn themselves out. If only.
Below you will find a few more pictures from the scrapbook of our May under CV-19. We have completely settled into our new home and are grateful to be here, virus or not.



































We’re ready to ease into June with fewer restrictions and, hopefully, greater normalcy. May God be with us one and all! ❤️
My Multiple Sclerosis has been a beast more days than not since my last post. I hate it and it hates me. I guess we’re even. Even so, life in these extraordinarily strange times has continued to flow on. Hubby is wrapping up grading finals this weekend and we’re both looking forward to him having a few weeks off before his summer schedule kicks off. He will be teaching from home again which makes me happy. It’s been so good to have human interaction during the day, even if it is just for short breaks between his classes.
Last week we joined what felt like half of our city in the parking lot of one of our area’s hospitals to see a B-2 Stealth Bomber fly over as a salute to the selflessness of our medical workers. I don’t know which I was more impressed with, the rare sight of two B-2s or the sense of unity and pride I felt seeing so many Americans come out to wave flags, clap, holler, and whistle as they flew over. To tell the truth, I’ve not felt much patriotism the last few years. Don’t get me wrong, I love my country and am grateful to be an American but the political tone and constant gamesmanship vomiting itself all over the media has not fanned the flames of my patriotic fervor. It felt good to see my fellow citizens come out in support of something that binds us together rather than tears us apart.


Hubby and I went to Target before the B-2s were scheduled to make their appearance. The line to check out snaked almost to the back of the store. It felt more like I was in line at an amusement park waiting to get to ride a new roller-coaster than the chance to buy toilet paper and Fruit Loops.

On the way home after the B-2s, this jacked up truck came roaring around us. I wonder what this guy is trying to compensate for with his huge muffler 🤔.

Speaking of compensations, one of the few (but best) I have from being immobilized on bad MS days is spending long hours with a snuggly cat tucked in my robe while sipping coffee.

I think being able to sit and watch nature from the comfort of my rocking chair on the back patio has not only kept me sane during endless days of forced rest, but has also given me something to look forward to. Here are a few snaps from my latest gallery of feathered friends…














I hope you and yours are both healthy and safe. God be with you!
































































We’re both ready for the current madness to end and return to whatever the new normal will be, I’m sure you and yours are too. Stay sane, safe, and healthy, we’re all in this together together ❤!