Hello, Friend! I hope you are well wherever you are when this post finds you.
I’m currently sitting on the back patio watching the birds on a gorgeous May afternoon. I can hear cardinals, house finches, titmice, and blue jays calling, singing, squeaking, and buzzing from the canopy overhead and behind us. Though it’s a warm, sunny day, there’s a lovely light breeze in the shade keeping me cool and bringing the last scent of quickly fading lilac across the yard to me. It is a springtime feast for the senses!
Yesterday and today have been absolutely joyful days as my typically excessive MS fatigue has lessened and allowed me to be up and about more than usual. So, naturally, I rode my scooter over to the lake in our neighborhood yesterday and soaked in some Vitamin D and the beauty of God’s creation around me.
After I rode back home from the lake, I decided to sit under the birches in the backyard.
Thanks for stopping by. May God be with you! ❤️, Amy
When it rains it pours! Our dishwasher gave up the ghost Saturday morning (my birthday) and flooded the kitchen.
Thankfully, Hubby is a pretty smart cookie and got the water shut off.
He wrangled the dishwasher out of it’s nest and discovered the water lines from it were bad and the tub on the bottom had a crack.
We found a replacement the same day and my Dad helped us get it home and supervised Hubby’s installation.
It was a lot of work, but Hubby got the job done and it was sealed with Pip’s approval. 😻
Speaking of Pip, we have been dealing with a bit of a scare with him. Last month during his regular, annual check-up we learned he had a grade 2 heart murmur. Our vet referred us to the University of Missouri Vet Clinic to see a cardiologist to investigate the issue further.
She gave us some good news today that it looks benign and we are scheduled to go back next year to keep an eye on things.
The weather has been nice enough each afternoon this week and, despite pretty lousy MS fatigue, I’ve been able to make it onto the patio to watch the birds. They fill my heart with joy and gratitude to God for the wonder of His creation.
Thanks for stopping by. I hope you have a wonderful day! May God be with you. ❤️, Amy
It probably came home with Hubby from work. It was friendly and visited me while in the vicinity. The first five days were a nasty business for both of us. Hubby is better, though he still has a bit of a cough and tires easily. I took Paxlovid, got better, then got Rebound Covid. I am definitely feeling better, though I can’t get rid of the cough. I’ve nearly polished off my third bottle of Robitussin in two weeks. I must not be the only one out there on the ‘Tussin ’cause Hubby is beating the streets after work tonight to try and score me a fourth bottle.
Though my body had just started making B-cells again and I only had a few (see my last post), I was able to fight the dreaded virus and live to tell the tale. I praise God for His timing and the fact He made our bodies to be such hardy machines. This experience has proven it’s safe for me to venture back out into the world again 🎉🥳.
I hope you have had a good start to March. May God be with you! ❤️, Amy
Energy all gone, Feels like I’m in a coma – A puddle of goo.
I think I’ve melted into and become one with my recliner these last four days.
Thankfully, once again, my feathered friends have come to the rescue and filled the long hours with the joy of their songs and avian antics.
Another source of happiness filling my idle time has been the company of our cats, Laudy and Pip. They have no idea what a blessing and source of company they are to me, but I count them as one of God’s treasures gifted to my keeping. And they are experts at the art of resting 😻.
A person very dear to me gifted Hubby and I a fun surprise, a 6-month subscription to Universal Yums. It’s a monthly box featuring snack food from different countries around the world. This month’s box arrived yesterday with treats from… Austria 🇦🇹 😋!
Hubby and I celebrated 17 years of wedded bliss last week 💞. First thing he did that morning? Cleaned the windows so I had a better view of the birds. Love and happiness – just look at that smile – are found in the doing of little things.
May you find your greatest joy in Christ this year and always. God be with you! ❤️, Amy
As you can see, my life has revolved mostly around our cats Laudy and Pip. That’s as it should be for a crazy cat lady. I did squeeze in making some delicious English muffins; they didn’t last long. They were especially good with some Tiptree Raspberry Jam made in England 😋.
Southwest Missouri has been in the grips of a severe drought this summer made worse by excessive heat over 100°F these last couple of weeks. As a result, I’ve not been out of the house much because MS and heat don’t mix well. Summer has traded her usually lush green frock for a drab yellowish-brown garb that isn’t nearly as attractive. We may get some rain later this week, it’s gotta come sometime!
The MS Update Part: You may remember that a few years ago I started taking a drug for my MS named Ocrevus. It was an IV infusion given every six months and I was able to get the last couple of doses at home through home infusion nursing. Well, after a lot of prayer and discussion with my neurologist, I have decided to stop taking the drug. This will be the first time in 26 years that I will not be on a disease modifying therapy. My disease has continued to progress, in the normal course of things, to a place where there are no current drugs to treat it. I’ve known I’ve had Secondary Progressive MS for the last few years but opted to treat it with the drugs available for Relapsing Remitting MS because nothing else was available. Ocrevus has some significant side effects when used long-term and I’ve reached the point where the risks outweigh the benefits. Not everyone with MS may agree with my decision but, for better or for worse, no one else has to live with the results but me. As always with MS, no two people have the same disease progression or outcomes. Though I appreciate the concern and good will of others, please don’t send me articles and cures to try. I am probably already aware of whatever you’ve found on the internet or what your aunt’s cousin’s friend’s dad tried and how it “cured” him. I chose to educate myself about MS as soon as I was diagnosed and have stayed on top of research as well as drugs, diets, and homeopathic interventions ever since.
I am quite at peace with my decision, I’ve known this was coming for a long time. I’ve had 32 years to get used to my MS, we’ve sort of grown up together and understand each other 😉. As always, I appreciate your prayers. Considering how long I’ve had MS I know I am doing very well related to many others. I can still walk some for short periods of time and I can independently take care of most of my daily living needs. My wonderful hubby is my right hand and I know God gave me a tremendous gift when He gave Todd to me. My sister and Dad are always ready to help at the drop of a hat and my Mom-in-law is only a phone call away and has come to the rescue on more than one occasion. I also have a loving and supportive church family, as well as good friends who care and always offer to help me whenever needed.
Thanks for coming by to catch up today, I know it’s been a while since I last wrote. When things cool off a bit I’ll probably be more likely to post more often. May God be with you! ❤️, Amy