Nature Nurturing

We’ve seen the perfect blend of summery sun and rain here in Southwest Missouri this past week.  We’re usually roasting in nearly 100*F/38*C by this time in August, but we’ve had gorgeous 77-80*F/21-27*C days.   Thanks to the recent weather, nature is lush and bursting with color all over the place around us!  The forecast says it will only last another day or two, but it has been a delicious treat while it lasts and a balm for these many months during Covid-19.

A large forested area lies both north and south of our neighborhood with a good sized river about a mile down the road. It has both a well-maintained river access spot and, a little further down the road, an old, reallocated bridge that serves as the entrance for a greenways trail that winds through and circles our city. Additionally, our neighborhood has a little landscaped lake with a walking path, bridge, water feature, bird houses, and a bench along the shore. On Wednesday of this last week MS kindly lent me a decent enough day that I drove to the river in the morning and spent some time soaking in the views from the bridge at the trail’s head. After lunch, I headed off for a lovely, cane-assisted stroll around the lake.  There were butterflies everywhere in both places! They somehow managed to lift my spirits on their tiny little wings and carry them about as they soared around and flitted and fluttered here and there. Similarly, as I rested a couple of times on my way around the lake in the afternoon, I found myself smiling as I tried to follow the dizzying courses of dozens of dragonflies going nowhere and everywhere at once. What funny little creatures! Oh, and don’t worry, there are plenty of bird and cat photos below too😻!

This past Friday was an exciting day when…my new camera arrived!!! As you peruse the photos below, see if you can guess which ones I took with my point-and-shoot and which ones were with my new DSLR. The new camera inspired me to branch out and find a new photo editing app to play around with. It’s pretty safe to say I have a lot to learn. As an example, I hadn’t been messing around with the camera for more than five minutes before I realized I needed to invest in a more versatile lens. Some lessons are pricey πŸ˜‰! No worries though, I am having fun and can’t wait to learn and grow my skills (and lens collection!). It was time for the upgrade because I needed another sit-down hobby to add to my arsenal of things to do when the MS monster has me lashed to the couch. 

Speaking of MS, my next Ocrevus infusion is at the end of this month. Let’s see, this will be my second full dose which means I’ve been on it for 18 months. For the first time since starting it I think I’m experiencing the “crap gap” I’ve heard other MSers describe just before their next dose. My already ridiculous fatigue intermixed with poor balance, endurance, gait, bladder issues, clumsiness, sluggish word finding, and occasional cog-fog have all ratcheted up to the next level over the last few days. I hope topping the tank with more O-juice knocks my symptoms back down to the previous notch.

Part I: Riparian and Lakeside Entertainment

I’m guessing it’s a northern crescent.
Common buckeye
Fiery skipper butterfly
Northern pearly-eyes
Brown-eyed Susans
Dewberries??
Blue dasher
House Finch before the rain.
House finch during the rain.
House finch after the rain.
Mourning Dove trying to stay dry.
Same dove after the rain.
Female house finch with Niger all over her beak; steady rain.
I NEVER pass up the opportunity to snap pics of this skittish Red-bellied woodpecker. BONUS: Carolina chickadee πŸ™‚
“Who said that?”
Suet on the tip of this chickadee’s beak.
Our resident nuthatch. This little thing fascinates me.
Carolina wren and female finch
My Laudy girl 😻
My Pipper boy 😻
He is Bee-A-U-tee-ful!
Her eyes! Her little whiskers!! Her white undercarriage (as hubby likes to call it)!!!
Her fur feels like crushed velvet and she insists on being held nearly all the time. What’s not to love?!
Not to be outdone, Pip is our resident lap and shoulder snuggler. He has the sweetest disposition and is an absolute riot to play fetch with. He has gorgeous golden eyes and perfectly preposterous ears!!
CRX waves to make anyone jealous.
There’s a reason hubby calls Pip “a tender little guy.” He gives the best snuggles and makes me smile.

Here we are at the end of another blog. I looked back and realized I have been posting weekly lately. I didn’t mean to, or not mean to, it just happened. Will there be another blog next week? Maybe, I guess we will both have to wait and see😁. Either way, I’m glad you stopped by for a look-see. May God be with you! Amy

Hercules Wants My Toothbrush

Hercules Wants My Toothbrush

I didn’t know MS recruited, but it seems that it recently acquired the mythical legend Hercules to it’s dark side.Β  I guess he took a shine to my electric toothbrush because it certainly feels like I am in an all-out, do or die wrestling match against some kind of superhuman force the entire two minutes it runs.Β  Oral hygiene shouldn’t require a 10 minute power nap to recover from, right?Β  It’s been so long since I’ve experienced “normal” energy that I can’t remember.Β 

Anywho… despite insipid fatigue, life has crept quite happily along.Β  Because I have the best hubby and sister in the world, they each drove ten hours both ways (!) so I could spend a week staying with my sister in Texas. We didn’t do anything or go anywhere because CV-19 is crazy in Austin at the moment, but we had fun anyway and I love spending time with them all.

I helped my nephew study for his permit.
I sewed a toy for their new puppy, K.C. Yep, they are die hard Chiefs fans 🏈
My bro-in-law shared his addiction to these cookies with me πŸ˜‹.
Peanut butter and jelly
S’mores
Not to be outdone, my sister opened my eyes to this tasty delight πŸ˜‹.

(L-R) chocolate, raspberry-white chocolate cheesecake, red velvet, lemon.

Other than having to start a diet when I got home, everything else fell back into place like I had never left. I still have the sweetest hubby and cats one could ask for and the birds are as photogenic as ever. Oh, and a squirrel has found the feeders. He’s cute now but he probably won’t be if he decides to invite his friends.

Purple Finch
Nuthatch
Look how long the nuthatch’s beak is! They are easy to identify because they do everything upside down.
Goldfinch
Young female Finch
Cardinal
Eastern Bluebird
He is a cute little booger!
Laudy
Pip

A few days have been nice enough I have been able to spend time outside, but heat and MS don’t mix so I’ve been indoors a lot more than I would like. I’ve had extra entrenched primary MS fatigue which has made it hard to do much. (Primary fatigueΒ is thought to be due to nerve messages from your brain and spinal cord having to navigate theΒ areas of damage caused by your MS. It takes more energy to send and deliver messages to other parts of the body, like the muscles in your arms and legs, causing a build-up of fatigue. – mstrust.org.uk). However, it feels good to be back home and I have books that need reading, shows that need watching, puzzles that need putting together, music that needs listening to, and apps that need playing.

Stay safe and God be with you!

If Only

The whole world is mad enough to chew nails and spit rivets at each other.Β  The wildfire of anxiety already fueled by a viral pandemic and financial hardships has roared into an inferno fanned by outrage over racial injustice.Β  Add all of this to an overly politicized, deeply divided, radically idealized, and seemingly diabolicaly opposed Left and Right presidential election year and, voila, here we are.Β  McCarthyism (“The practice of making unfair allegations or using unfair investigate techniques, especially in order to restrict dissent or political criticism.” – Dictionary.com) turned into Cancel Culture (“The popular practice of withdrawing support for public figures and companies after they have done or said something considered objectionable or offensive.” Dictionary.com).Β  Unsurprisingly, we (collectively as humans) have learned absolutely nothing from God or history on how to get along with each other.Β  Like sheep, we’ve all gone astray.Β  The only difference between us and sheep is that we like to point and call out the wrong courses everyone else has taken, but never look back at our own errors.

As a result, I’ve been rationing my news intake and limiting my time on social media platforms.Β  I can’t take all the lava-hot words and vitriol spewing out of the mouths on all sides of the world’s current, self-inflicted problems.Β  I don’t know how to heal or even understand the differences of opinion and the vast chasms that seem to lie between the logic and thinking of some of us.Β  So, with that admission, what can I do?Β  I have been and will continue to lay them down at my Father’s feet.Β  He is the answer to everything, always. God excels in doing what everyone says is impossible.Β 

I’m doing the same on a personal level.Β  While the huge fires of the world keep burning, so too do the little flames within my life.Β  I’m sure you understand because we’re all the same.Β  My personal fire is called MS but yours might be named such things as Furloughed, Job, Money, Stress, Anger,Β Divorce, Death, Parent, Child, Spouse, Cancer, Diabetes, Aging… just about anything, really.Β  For me, MS is constantly melting away tiny pieces of my own sovereignty.Β  It’s very difficult to let go of the things in life that make you feel like you have some control, such as driving, shopping, cooking, and walking.Β 

In much the same way that I realize I can’t put out the MS fire in my own life and deal with the destruction it leaves in it’s wake on my own, we, as a nation and even world, must understand we will have to work collectively to bring the flames of our society back under control.  The solution will not be conceived in fear of an unseen germ, worry over the next great depression, or riots that break our neighbors’ windows and loot their livelihoods because of injustice.  No, if it could then we would already have the answer.   The fix is to be found in love.  The kind of love the apostle Paul described in I Corinthians 13:4-7, the sort God has for us.  His love is patient, kind, happy for others instead of envious, lifts others up instead of boasting about self, is well mannered instead of rude, seeks the good of others instead of self, is slow to anger, keeps no records of wrongs, delights in holiness instead of evil, rejoices in the truth instead of sensationalism, always protects, always trusts, always hopes, and always perseveres. 

I realize what I am about to say is very Pollyannish of me, but…  If every person would recognize the truthfulness and wisdom of this type of love and make it their own personal goal to practice it, without policing others and how they are doing as they attempt to do the same, all the infernos of the world would simply burn themselves out.  If only.

Life During the Time of Corona through My Camera Lens

A quiet lane a block or so from our house.
Along the quiet lane.
Dogwoods in all their glory.
Spring comes alive in our backyard.
Our neighbor’s tulips
Blooms in our backyard.
Our neighborhood has a small lake with a walking trail around it.
A bit of sunbathing.
Breathing new life into our old iron rocking bench.
πŸ˜‚
My stepmom gave me a cutting from a plant my sister Glenda gave her 20ish years ago. Glenda died in a car wreck 14 years ago next month. It’s a happy coincidence the pot she put the cutting in matches the lawn ornament behind it πŸ’™.
I added a few bird feeders last week and they sure have been busy!
To the left…
…to the right.
Momma Tree Sparrow and…
…baby in one of our nesting boxes.
White-throated Sparrow
Downy Woodpecker
This Nuthatch is a new visitor, I get so excited every time it visits.
Goldfinches are a favorite of mine.
Such a cute baby Goldfinch!
We have a pair of stunning Bluebirds nesting in one of our boxes!
Momma Cardinal sporting a beautiful crest.
This little fella thought “crest” meant a mohawk!!
We’ve had a lot of House Finches at the feeders, they sing and chirp until you can’t help but smile that God created such marvelous creatures!
(Female House Finch)
Elegant and gorgeous Mourning Dove.
I think this dove may have a birth defect. He comes around a lot and I’m always happy to see him. I’m rooting for him out in the great-wide world.
Hubby has kept himself busy with chores…
…fun…
…making labs for students…
…and teaching from home.
Meanwhile, my life under the shutdown looks exactly like it did before Coronavirus. I always have a cat nearby and I don’t leave the house very often. I guess MS has been good for something, it’s made surviving the shutdown easy-peasy for me.
I’m still sewing when I have the energy, but I have swapped my usual tasks to making masks. As ever, Laudy supervises my work.
Pip as my parrot πŸ˜‰.
LOTS of napping!
Yes, I did cut my own hair 🀫🀭.
I’ve been using my foot pedal a lot these days. My MS has been a beast lately, but I’m determined to keep moving by hook or crook.
We celebrated Hubby’s birthday on the 20th of April…
…and mine on the 22nd. (I forgot to take a picture of the donuts we had for Hubby’s breakfast.)
Texas Roadhouse for dinner on my bday πŸ˜‹.

We’re both ready for the current madness to end and return to whatever the new normal will be, I’m sure you and yours are too. Stay sane, safe, and healthy, we’re all in this together together ❀!

Adventures in Moving House

Well, the deed is done. We moved and have been in our new house for exactly one week! Mercy, moving created a strange brew of fevered, paradoxical feelings. We were always somewhere between excitement and dread; anticipation and foreboding; exhaustion and exultation; and daydreaming about what we were going to do in our new house, then mixing it with the reality of our bank account.

Thankfully, once our old house sold we had about three weeks to pack and get ready to move into our new house. As you know, I struggle mightily with fatigue related to my MS. My Hubby was super busy with work so I created a plan of attack and paced myself to get everything packed and labeled for the move.

The day of our closing finally arrived and we celebrated by having dinner with Hubby’s Mom!

We closed on a Friday and had arranged for family and friends from church to help us move boxes on Saturday. We have such wonderful people in our lives! I sat in a chair and directed traffic so everyone knew where they were going. I’m pretty sure some child labor laws were broken.

Our Cornish Rex cats, Laudy and Pip, made the transition to the new house swimmingly. They hung out in our master bath and closet during the move, then came out once everyone was gone to check the place out. Our new reclining love seat provided a much needed place to take a break. There was little rest for the weary though. We worked hard Sunday afternoon to clear paths and locations for our furniture.

The movers arrived Monday morning at 8:00 a.m. to load up our furniture and appliances from the old house to take to the new. I stuck to my scooter all day in order to make it through the day.

I had done pretty well Saturday and Sunday managing my energy, but I was really struggling to keep going by Monday evening after everything was finally in our new house. Both the cats and I were turned around and upside down.

Somehow everything in life seems to happen all at once. It turned out that my first full infusion of Ocrevus just happened to fall on Thursday of last week, three days after we moved. I expected, and was correct, that I’ve been extra tired since getting the drug. I purposefully allowed myself to work past what I knew was good for me in order to get as much done as possible before the Ocrevus took me down.

Slowly, I’m recovering from my treatment and our new house is feeling more and more like home. I do a little bit each day and my hubby does a whole lot each evening. We’re hoping this is the last move we ever have to make. But even if it isn’t, what I love most about my home is who I share it with πŸ’•.

If Only… NASA, Amy, and Youth

Sometimes the difference between an intricate, highly complex machine working or blowing apart is down to a simple, small component’s integrity at one single moment in time. NASA learned this lesson the hard way in both the Challenger and Columbia disasters. In both cases, the defective components were made months and even years before either shuttle was assembled.

As the symptoms of my MS have progressed, I am reminded of how “fearfully and wonderfully made” (Ps 139:14) each of us truly are. Despite billions of dollars worth of research, centuries of learning about the anatomy and physiology of the human body, and life-long careers devoted exclusively to trying to figure out what goes wrong to make MS activate, there is still so much we don’t know. In the early 1600s, German mathematician and astronomer Johannes Kepler was correct when he described his study of planetary movements as “thinking God’s thoughts after Him”. This statement is true in every avenue of mathematics and science, especially in the study of biology.

Somewhere, somehow, some way, long before I ever had any symptoms of my Multiple Sclerosis, all the viral, environmental, hereditary, and biological elements were just right to kick this disease into action in the biological petri dish that makes me me.

My immune system got all confused and started destroying itself. Thanks to MRIs, I have seen for myself the white smears and dots scattered across my brain and spinal cord where tell-tale signs of damage can be easily seen. It remains inexplicable how it happened, but that doesn’t stand in the way of it being true. All my progressive, worsening problems with balance, walking, incontinence, dropping things, quick and excessive fatigue, tingling, and slow processing are all due to these white globs that made their initial marks nearly thirty years ago.

It’s staggering to imagine that such small blobs etched out so long ago have created the big problems I deal with every day.

Hmm, I feel a life lesson coming on. Sometimes it’s the little, but wrong, things we allow ourselves to do early in life that eventually turn out to be our undoing in the end.

If only someone would have checked the integrity of the O-ring on the right solid rocket booster before the Challenger took off, seven lives would have been saved. If only one day we could figure out what causes MS and how to stop it before other people’s neurologic integrity becomes comprised and they end up going through a progressively worsening disease process. If only we ourselves strove to live Godly lives and to teach the young how to choose right, so many lives would flourish and God would be glorified. If only.

Changing Seasons

A chill in the air, pumpkins, bales of hay, colorful leaves, small town festivals and fairs, costumes and candy, long sleeves, and warm bowls of chili.Β  Autumn is my favorite season and I am not alone. More poems have been written extolling Autumn’s winsome ways than any other season. One of my favorite childhood memories is playing with my younger sister for hours in the leaves.Β  I would rake β€œroads” out of the leaves in the backyard and she would β€œdrive” her Tonka Truck through them all with Ken and Barbie dressed up in their warmest outfits in the driver and passenger seats.Β Β 

It wasn’t until I was older that I understood how the changing seasons reflect the stages of our lives.Β  I am now in the early autumn of my life as the big 50 lies in wait to spring upon me in six months time. I miss the never ending energy and gusto of the spring of my youth.Β  I fondly remember the excitement and first-time experiences of living through the summer season, too. All the β€œadult” things like the first job in my chosen profession, buying my first house and my first car, being entirely responsible for budgeting my first paycheck…and so on were exciting times.Β  During the first two seasons of life the sun hardly ever seemed to set and youth had enough vitality to live the long days to their fullest measure.

Now, in the early autumn of my life, my energy wanes like the shortening days, with fewer productive hours to get things done.Β  There are not nearly as many firsts to experience, either. However, what has been lost from the previous seasons has been made up for in privileges only afforded to those blessed with long years.Β  I have lived long enough to have naturally accrued some wisdom along the way.Β Β 

I’ve learned how to tell the difference between what is important and what is not, and the truth from a lie.Β  People are more important than things. I can look back and see how God has led me through the fires and floods to safer, higher ground.Β  And I have learned having fun is different than living a life of joy, the latter being so much more important and meaningful. Chasing after experiences does not equate experiencing life to the fullest.Β  The fullest life is one that surrenders self in order to experience the indwelling of the living God, Christ living in me and me living in Him.

As the trees change to autumnal colors and I find myself purposefully traveling roads with hilltops that afford me a larger breadth of view so I can soak in all the beauty, I look back over my life to see the distance I have travelled.Β  Not all the views are beautiful, I’ve not lived perfectly, just humanly. However, I can see and feel the hand of God lifting me higher and higher until the dead and barren patches are covered over with His forgiveness, mercy, grace, and loving-kindness.Β  He calls us all to live, move, and have our being in Him (Acts 17:28). He really does make all things beautiful in His time (Ecclesiastes 3:11)!

God’s blessings,
AmyΒ Β 

I’ve Become a Little Sew and Sew Thanks to Information Overload

Hello Friends, happy October to you!

It’s been three weeks since I finished my Ocrevus infusions and, thankfully, I have returned to my normal MS baseline. I’ve had quite a few people ask me if I have noticed my MS “getting better yet”. Sadly, the answer is no. There aren’t any cures for MS and there is nothing to take away the damage that has already been done. The purpose of Ocrevus, and all the other disease modifying drugs, is to try to stop any further damage from occurring. There are many researchers working hard to try to figure out how to not only stop MS from progressing, but also how to repair damage to the nervous system in order to reverse the debilitating symptoms of the disease. This is a pretty good segue into the information overload mentioned in the title.

Perhaps you are like me and have had to take breaks from social media and the constant barrage of local and international news for the sake of maintaining your own sanity. Well, about a year ago I signed up to a couple of daily MS research news outlets. They arrive in my inbox each morning and present several summaries and links from around the world to everything ranging from research proposals to current studies in mice (poor little mice, they’ve born the brunt of forward thinking MS flops and successes), comparisons of a current MS drug against a possible new drug, clinical trials in all manner of stages, forums about MS, and even articles by fellow MSers about how they live and cope with the disease.

I typically do like to be on top of all the latest MS information, but here lately I’ve been feeling like it’s all too ivory tower. Down here in the trenches, at least in my trench, it’s muddy and wormy with the walls always caving in and needing constant repair. I’m covered in the dank, earthy stench that never leaves my nostrils, even when I dare to raise my head in an effort to try to go over the top, despite having trench-foot. To top it all off, a hail of bullets marked MS come flying over my head intermittently keeping me in a state of constant vigilance and exhaustion.

So, at least for now, I’m going to lie low down here in my mucky but familiar trench and try not to worry about what the people in the ivory towers conjure up for the next move. I’m not giving up on it and I’m glad someone is in the ivory tower, I just need a break from it all for a while.

To that end, about a month ago, I dusted off my sewing machine, turned the music up, and started stitching away! My Mom was a wonderful seamstress and even owned a fabric store when I was young. She showed me how to sew but it didn’t come as easily to me as it did for her. I took a sewing class in high school and had a few lessons through 4-H, too. I’ve sewn a few things through the years as an adult but never really thought of it as something I could get into as a regular hobby. That is until now. I am thoroughly enjoying myself and looking forward to each new day to get stuck in to some new project! The first one was this little sewing catch-all.

I used the leftover material from the catch-all to make some cute bowl huggers for the microwave.

While it is true that some days I am too tired to sew at all and other days I have to take breaks after just a little bit of sewing exertion, just being in my little sewing space brings me joy. For example, looking at all this thread…

…and ALL this fabric with cats ❀️ brings me inspiration for new projects to try when I eventually do have energy!!

I finished up a couple of these boxes yesterday so I would have a better way to see and store my fabric.

I’ve made several things for others, too, which has given me joy and purpose. Fair warning: If you get a Christmas gift from me this year it’s probably going to be homemade. But don’t worry, not all the fabrics I’ve been stashing away have cats on them πŸ˜‰.

Signing out from the trenches and hoping you’re upwind from me!

Amy

Shopping at Full Speed

Its bright red concentric circles beckon to land me squarely in the store. The aroma of freshly made popcorn and your choice of hot or cold, legally addictive, caffeinated beverages magically combine to infuse the air and make you feel like you want to stay a while. Β It provides ample opportunities to people watch a slightly trendier, but still as strange, menagerie of folks than it’s yellow-sparked logo competitor. At any given time, it probably has more tattoo and pierced skin shoppers with hipster haircuts than any other place in town. Β Home goods, furniture, clothes, undergarments, electronics, books, toys and games, food, candy, lotions and potions, a pharmacy, cleaning products, pet supplies, seasonal decor, greeting cards…pretty much everything a first world, middle class, 21st century human needs to function in our consumerist society.

I used to be able to drive myself to this shopping mecca and make my way through any aisle I chose at a leisurely pace.  When my cart was full and I had breathed in all the buttery-laced air I wanted, I could stand around in the check-out lane with no worry of how long it would take to pay, walk back to my car, and put all the bags in the backseat before finally driving home.  I could also bring the bags into the house, empty the contents, and, one by one, put them away into their respective places without care for how much energy I expended.

That was then and this is now.

It’s been well over three years since I dared to make this excursion on my own.  Like so many other things when living with MS, doing activities on my own didn’t abruptly stop.  My independence diminished similar to how individual flurries accumulate in a gently falling, long, slowly moving snowstorm.  Flake by tiny flake they collected until one day I found myself buried under the avalanche of symptoms, and shopping on my own became yet another task that fell into the β€œinsurmountable” category.

Nowadays, my hubby chauffeurs me into town and parks in one of the handicap spots conveniently located close to the door.  He drags my wheelchair out of the trunk and together we spin our way through the store. I hate riding in those motorized wheelchairs with a basket on the front that beep every time you need to turn around or want to see something behind you.  Instead, I’ve learned the art of balancing two handbaskets on my lap, fitting everything we need into them for the week. More difficult still has been learning to compromise and change our individually-preferred shopping styles in order to make our weekly Target run pleasant for both of us.  I’ve (mostly) given up my insistence that he push me at a leisurely pace through each isle of my favorite sections. In turn, he has (mostly) stopped whizzing me so quickly that we leave two-wheeled skid marks on the tile. Sometimes we settle on him leaving me in one aisle near something I want to look at while he flies through two or three other aisles.  

This approach has fairly easily carried over to other shopping venues like the grocery store and DIY stores.  Someday I hope it will overflow into shopping for clothes at department stores, but I’m not holding my breath.  I have to admit that watching someone else shop for clothes has a limited entertainment value. However, it is kind of fun to ride through the rest of the mall so fast that you can’t tell if the blue-haired people you pass are teenagers or grandmas!

Freedom, My Old Friend!

Crushed on the couch because I got dressed. My legs are telephone poles, it’s going to take a Mack-Truck to move them. Each arm is a 500 lb bar-bell. The remote is just a couple inches away. My brain keeps saying “reach out and get it” but nothing happens. I can’t sit up, I can’t even raise my head. It takes all my energy to blink my eyes. My mouth is open, too slack to close and it takes all my concentration to muster enough energy to swallow. One hour down, now three. I can hear. I can see. I know I am breathing. I can’t feed myself, maybe in the next hour. My chin itches but I don’t care, I’m too tired to scratch it. It’s four hours now. I think I can move my hands. Yes, but my fingers aren’t strong enough to push the buttons on the remote. Maybe 30 more minutes will do the trick. It was all noise before but now I can make out the words from the music playing on TV. I like this song, I don’t need to change the channel. Todd pulls me up so I can sit. Easy does it. Just enough energy to feed myself. The drink is too heavy to lift, but I can sip through a straw. I have to lie back down to rest. Two more hours pass but at least I can follow the plot of the show Todd’s watching.

MS Fatigue is not the same as being tired. You are tired when you expend a lot of energy, like overworking in the garden, or when you don’t get enough sleep, such as pulling an all-night study session before a test. MS Fatigue has nothing to do with sleep or overwork, it is present no matter what, and it is so oppressive no amount of will-power or positive thinking exerts any difference over it. It takes you and holds you prisoner in a nearly unresponsive stupor, virtually catatonic. Sometimes the excessive, paralyzing, worst form of fatigue enters and exits daily. Other times, it comes and goes like a distant relative you only see on holidays or special occasions. I hate it. I don’t have the vocabulary to explain it. I dread every time it visits. It doesn’t wait for invitations, it just shows up and demands an audience. I’ve been under it’s stern, cruel rod of chastisement more times than I can count. It doesn’t get any easier, BUT I know it won’t last forever. It will eventually ease and, though it may seem reluctant at first, let go of it’s vise-gripping, soul sucking, strangle of me and let me breath the air of freedom again.

(Inhale) Freedom, (exhale) my old friend!