Hello, Friend! Yes, it’s been a while. I’ve been under the thumb of 5Gs of MS fatigue lately. I’ve been mostly home enjoying my usual favs: cats, hubby, birds, and flowers in our garden.
May God be with you! ❤️, Amy
Summer and MS: 😂
Tag: #multiplesclerosis
Whew, What A Week!
When it rains it pours! Our dishwasher gave up the ghost Saturday morning (my birthday) and flooded the kitchen.
Thankfully, Hubby is a pretty smart cookie and got the water shut off.
He wrangled the dishwasher out of it’s nest and discovered the water lines from it were bad and the tub on the bottom had a crack.
We found a replacement the same day and my Dad helped us get it home and supervised Hubby’s installation.
It was a lot of work, but Hubby got the job done and it was sealed with Pip’s approval. 😻
Speaking of Pip, we have been dealing with a bit of a scare with him. Last month during his regular, annual check-up we learned he had a grade 2 heart murmur. Our vet referred us to the University of Missouri Vet Clinic to see a cardiologist to investigate the issue further.
She gave us some good news today that it looks benign and we are scheduled to go back next year to keep an eye on things.
The weather has been nice enough each afternoon this week and, despite pretty lousy MS fatigue, I’ve been able to make it onto the patio to watch the birds. They fill my heart with joy and gratitude to God for the wonder of His creation.
Thanks for stopping by. I hope you have a wonderful day! May God be with you. ❤️, Amy
It’s Blooming Spring!
Have a lovely day! God be with you. ❤️, Amy
A Week In My Life
Hello! I bet you didn’t expect to hear from me again so soon, did you? It’s been a while since I did a “week in my life” sort of blog, so…I did. Let’s see, when I last wrote I believe I told you I had finally tested negative for Covid 🎉. I was still sick, though. I started some antibiotics for a bacterial sinus infection 5 days ago and am happy to report that I am doing much better. I still have a cough, but I’m hoping it will continue to dissipate with time (and another 5 days of antibiotics 😉).
Surprisingly, my MS hasn’t been too bad this week and I was able to putter around the house with reasonable rest breaks between activities. This has been a HUGE blessing to me ☺️!
Anywho, I’ve been sewing up a storm and enjoying myself thoroughly this week! As a matter of fact, in the pictures you’re about to see I think I’m wearing four different things I either finished up or made this week. (There’s more sewing stuff a bit further down too 🙂.)
Covid wore me out and I hadn’t cooked for over two weeks, we survived on freezer meals I had squirrelled away. I finally found the energy to get in the kitchen again on Tuesday. I made a huge pot of beef barley soup, enough to last us several days. I also decided to get out my Mom’s high school Home Ec. cookbook and made a couple loaves of our favorite bread. Mom’s book has seen better days, but it is very special to me and has some great recipes.
Oh, and I made some chocolate chip bars on Thursday from the King Arthur Flour Cookie Cookbook. 😋. I love lots of chocolate chips but Hubby only wants a few, and the itty-bitty ones. So, I compromised and put half the normal amount of my chips and some of his tiny chips into the batter and they actually managed to please both of us.
I hadn’t cleaned my sewing room for several weeks, it was really bad. I cleared the decks on Monday and gave it a good going over. I don’t know how I didn’t end up at urgent care with 23 pins stuck in my feet! YIKES 😬! I also gave both my sewing machine and my serger a good service and cleaning.
The next few photos are random.
Of course I watched the birds this week!
Lastly, I’ll share some of my favorite moments of the week with Pip and Laudy, my constant companions.
Thanks for joining me this week. May God be with you. ❤️, Amy
Through the Picture Window
At the end of January I had a blood test to see if my immune system was rebuilding itself after stopping my MS treatments about a year ago (March 1st to be exact). The good news is yes, I have some nascent cells emerging. The bad news is I don’t have very many. I’m still immunocompromised, but the tide is slowly turning 🥳.
My MS has been all over the shop. Two weeks ago I had a string of good days and was able to cook and sew and putter around the house. Yesterday afternoon I couldn’t sit up or hold my head up and spent hour after hour in bed. Today, I’ve been able to sit up and ride around the house on my scooter, but my legs are like concrete and won’t work. Tomorrow? Your guess is as good as mine. The only predictable thing about MS is its unpredictability.
Thanks for staying tuned and stopping by. May God be with you! ❤️, Amy
MS Haiku
Energy all gone,
Feels like I’m in a coma –
A puddle of goo.
I think I’ve melted into and become one with my recliner these last four days.
Thankfully, once again, my feathered friends have come to the rescue and filled the long hours with the joy of their songs and avian antics.
Another source of happiness filling my idle time has been the company of our cats, Laudy and Pip. They have no idea what a blessing and source of company they are to me, but I count them as one of God’s treasures gifted to my keeping. And they are experts at the art of resting 😻.
A person very dear to me gifted Hubby and I a fun surprise, a 6-month subscription to Universal Yums. It’s a monthly box featuring snack food from different countries around the world. This month’s box arrived yesterday with treats from… Austria 🇦🇹 😋!
I hope you are well.
God be with you! ❤️, Amy
Christmassy Christmas Cheer To You and Your Kin!
Christmas tidings to you, my friend! Here’s a peek of Christmas at our house.
I wish YOU a wonderful, happy, healthy, festive Christmas season! Thanks for stopping by today. May God be with you! ❤️, Amy
Recent Scenes
It’s been a very good couple of weeks 😊. My MS has loosened the reins a bit some days and not ruled my life as such a tyrant every moment. I’ve seen a lot of family, especially this past week, and they have boosted my spirits immensely.
These little friends came to visit too 🐦🪶!
My Hubby makes the best thin mint concretes – such a treat!
I hope you are enjoying your little slice of time in whichever corner of the world you call home. God be with you! ❤️, Amy
Cozy Days
Hello again, Friend. Below you will find some random pictures of things I’ve been doing to fill my winter days.
I really enjoy following several YouTube vloggers in the sewing world and wondered how hard it would be to take pictures of each step of garment construction like they do. I gave it a go and learned they have a lot more patience than me! Most of the pictures I took are in my camera’s trash and there they will stay. I’m sharing a few just to make myself feel like I didn’t waste all the effort it took to complete the experiment.
My favorite Laudy pics of the past few weeks…
We had some really beautiful warmish days since my last post so, of course, I sat out in the backyard and watched the birds.
But, my favorite winter activity? Snuggling with Hubby!
Lord willing, I’ll write again soon. God be with you! ❤️, Amy
Hello, Again
Hello, again.
The last time I posted I told you I had a relapse of my MS and was getting ready for a few days of steroid infusions to try and hasten recovery. Sure enough, it happened and my symptoms have improved. My left eye stopped twitching and feeling numb, I can move my legs again and walk with less of a shuffle-stumble sort of thing. My energy level has improved to allow me to be up for more than 3-5 minutes at a time. Things are still not back to where they were before, but I’m hoping the trajectory continues to move up.
Huge doses of steroids given in a short time creates numerous icky side effects – one of the worst for me is flushing of the skin. That being said, the side effects during the infusion are nothing compared to the slam your body takes when your last dose is done. Agonizing, insipid, catatonic-like fatigue reigns for about three days while your skin hurts to the touch and your muscles ache down to the bone. Slowly, the goo seeps out through every pore of your being and, around day four, you sense you are morphing back into feeling like a human.
I’m so thankful it’s all behind me now. It’s been four years since I had a relapse necessitating steroids. Yesterday marked four years since I completely retired due to MS and April will mark 32 years since my diagnosis. I’ve never felt bitter about this disease nor thrown my fist in the air screaming, “Why me?”. I think a better question is “Why not me?”. Everyone has some struggle to deal with in life. There’s no such thing as luck, good or bad. There is such a thing as attitude, though. As Philippians 1:27 says, “Whatever happens, conduct yourselves in a manner worthy of the gospel of Christ.” Though “whatever happens” here is in reference to whether Paul can come to visit the Philippians or not, he goes on, in the same verse, to tell them, “Then, whether I come and see you or only hear about you in my absence, I will know that you stand firm in the one Spirit, striving together as one for the faith of the gospel.” No matter what diseases, frustrations, difficulties, or unexpected troubles come our way, we are to respond with a Christlike attitude that brings honor and praise to the glory of God.
Nothing makes me think of God more than His creation.
I hope you are doing well. May God be with you. ❤️, Amy
Amy's Axons 